Christopher
Member
- Joined
- Jan 6, 2014
- Messages
- 29
- Reason
- Other
- Country
- SE
- State
- Vastra Gotaland
- City
- Stockholm
Hello old friends.
Im atm laying in my bed. The feets, calves, the tounge have clinical proved fibrillations and fasciculation. Some stiffness/burning legs, but when i think of you guys, it cant even be compared.
What started nearly 3 year ago with a numb leg and weak hand was not ALS. It was a genetical nerve myelin disease. Charcot-Marie tooth/HNPP. Im checking into this forum now and then and just wishes for a cure soon. I did 10 ice bucket challenge videos Wish i could do more. Stay in touch. Hugs xo
Im atm laying in my bed. The feets, calves, the tounge have clinical proved fibrillations and fasciculation. Some stiffness/burning legs, but when i think of you guys, it cant even be compared.
What started nearly 3 year ago with a numb leg and weak hand was not ALS. It was a genetical nerve myelin disease. Charcot-Marie tooth/HNPP. Im checking into this forum now and then and just wishes for a cure soon. I did 10 ice bucket challenge videos Wish i could do more. Stay in touch. Hugs xo