hope87
New member
- Joined
- Mar 16, 2015
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- DC
- City
- Washington, DC
Hi everyone, and thank you in advance for being so incredible. I've read through these forums, and it amazes me how warm and helpful you all are despite your own hardships.
My neuro has ordered 2 MRIs (brain and spine), with and without contrast. Came back clean. Two rounds of bloodwork to test for the usual suspects, and then some. Came back clean. And she's given me full 20-minute long clinical examinations twice. And she says both exams were stone cold normal. She says she's at a complete loss.
Tomorrow, however, is my EMG. And I'm scared to death. I'm not talking about it to anyone, because it only freaks me out further.
I realize the first couple of symptoms I listed don't sound like ALS at all. But what about all the muscle twitching? And the weakness? My legs feeling like jelly?
Any words of advice or insight would mean more to me than I could POSSIBLY articulate.
- About 7 months ago, I felt a subtle but strange electric sensation in both of my legs. It was accompanied by a slight tremor in both legs as well. It lasted maybe 20 minutes then disappeared-- but the following day, both of my calves were taught and extremely sore. Exactly as if I'd just run 10 miles and exerted them too much. This was the first and only time it's happened, but that's what started everything else.
- A few weeks later, out of no where, my right eyelid felt like it was drooping. Bad. But it wasn't. But the feeling was so intense I couldn't focus on anything else, and this sensation proceeded to continue-- on and off-- for several months.
- That symptom has since dissipated, but has been replaced with a feeling as though my right eye muscles are strained. Like they're just working harder than my left eye. Weirdly, it's way worse after I first wake up, but as soon as I start using the muscles to look around... it almost disappears.
- The past 3 months, I've started feeling a vague weakness in my left bicep and both legs. It doesn't cost any extra strength to move them, per se... they'll just feel like jelly. Like they're shaky and unstable. Also, my left arm will fatigue noticeably faster than my right.
- Lastly: fasciculations. Everywhere. I'll go days or weeks without any, but then go days or weeks where my legs, arms, shoulders, sometimes even my face, will twitch. A lot. This is occasionally accompanied by a strange buzzing sensation in my muscles, like there's a low-setting vibrator humming inside of me.
My neuro has ordered 2 MRIs (brain and spine), with and without contrast. Came back clean. Two rounds of bloodwork to test for the usual suspects, and then some. Came back clean. And she's given me full 20-minute long clinical examinations twice. And she says both exams were stone cold normal. She says she's at a complete loss.
Tomorrow, however, is my EMG. And I'm scared to death. I'm not talking about it to anyone, because it only freaks me out further.
I realize the first couple of symptoms I listed don't sound like ALS at all. But what about all the muscle twitching? And the weakness? My legs feeling like jelly?
Any words of advice or insight would mean more to me than I could POSSIBLY articulate.