megan80
Member
- Joined
- Dec 22, 2013
- Messages
- 14
- Reason
- Learn about ALS
- Country
- AUS
- State
- NSW
- City
- Syd
H there,
I am after some information. I have recently posted on here prior to my neurology appointment. I am still no further clear into this jigsaw puzzle of symptoms as I was before.
My symptoms include the following
. Uvula is pointing upwards instead of hanging down it also deviates to the left or gets stuck on itself on the roof of mouth. Soft palate is normal and both sides raise symmetrically when I open my mouth. Uvula wiggles around and looks like it is weak though but does mostly return to the middle.
. Left arm from shoulders to the joints in my fingers get stiff and painful and feels much weaker than right arm.
. Body wide random fasiculations
. Some are thumpers that last all day and some are fleeting twitches.
I don't get them everyday.
. Neck feels strange and tight front under chin
Occasional difficulty chewing mostly sweets the, jaw and throat feels fatigued whilst eating sweets only
Left leg has a single vibrational feel in my knee internally, can't see it but can feel it.
Excess saliva on occasion and feel it sitting on corner of left mouth occasionally too. Not drooling but it is there and I notice it and suck it back etc.
I have seen a neurologist who undertook a emg and Ncs. Ncs was normal on leg and arm.
Emg was mildly abnormal and he stated at c4 and c5 junction. He was not concerned. He also stated he himself has had a worse emg than me. I don't know much more Thant this currently.
I saw and ENT who undertook full exam and examined my palate uvula etc.
Both doctors were not sure what may have caused the uvula to be this way it is and perhaps thought it was no related to the arm symptoms. .? But neurologist declared nerves may be involved. But if I had ALS I would be a third of my way into the Rest of my life as I have had symptoms for 6 months. .?
I had normal brain MRI and CSpine MRI. Any suggestions where to next? I appreciate any constructive advice anyone cod offer at this point i time. I am 33 year old female with young children so I am nervous about this obviously. I haven t had health concerns ever before until this. I don't suffer HA but now know all about it since I have decided maybe i do suffer it now. I can probably ignore all my symptoms except for the uvula as something clearly has happened to cause this change to my mouth.
Thanks anyway, that is long enough winded.
I am after some information. I have recently posted on here prior to my neurology appointment. I am still no further clear into this jigsaw puzzle of symptoms as I was before.
My symptoms include the following
. Uvula is pointing upwards instead of hanging down it also deviates to the left or gets stuck on itself on the roof of mouth. Soft palate is normal and both sides raise symmetrically when I open my mouth. Uvula wiggles around and looks like it is weak though but does mostly return to the middle.
. Left arm from shoulders to the joints in my fingers get stiff and painful and feels much weaker than right arm.
. Body wide random fasiculations
. Some are thumpers that last all day and some are fleeting twitches.
I don't get them everyday.
. Neck feels strange and tight front under chin
Occasional difficulty chewing mostly sweets the, jaw and throat feels fatigued whilst eating sweets only
Left leg has a single vibrational feel in my knee internally, can't see it but can feel it.
Excess saliva on occasion and feel it sitting on corner of left mouth occasionally too. Not drooling but it is there and I notice it and suck it back etc.
I have seen a neurologist who undertook a emg and Ncs. Ncs was normal on leg and arm.
Emg was mildly abnormal and he stated at c4 and c5 junction. He was not concerned. He also stated he himself has had a worse emg than me. I don't know much more Thant this currently.
I saw and ENT who undertook full exam and examined my palate uvula etc.
Both doctors were not sure what may have caused the uvula to be this way it is and perhaps thought it was no related to the arm symptoms. .? But neurologist declared nerves may be involved. But if I had ALS I would be a third of my way into the Rest of my life as I have had symptoms for 6 months. .?
I had normal brain MRI and CSpine MRI. Any suggestions where to next? I appreciate any constructive advice anyone cod offer at this point i time. I am 33 year old female with young children so I am nervous about this obviously. I haven t had health concerns ever before until this. I don't suffer HA but now know all about it since I have decided maybe i do suffer it now. I can probably ignore all my symptoms except for the uvula as something clearly has happened to cause this change to my mouth.
Thanks anyway, that is long enough winded.