NY Times - Sunday

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Excellent...thanks for sharing.

Laura
 
I can only think of one word as a response for this article: wow. Thanks for sharing, Diane.
 
Diane, thank you...what a wonderful article in so many ways.
 
Diane, Thank you for sharing that.
 
I spent hundreds of days at Mother’s side, holding her hand, trying to tell her funny stories. She was being bathed and diapered and dressed and fed, and for the last several years, she looked at me, her only son, as she might have at a passing cloud.

I don’t want that experience for Whitney — nor for anyone who loves me.
I'm glad to see the disease get more exposure, and I respect the difficult decisions we all have to make. But the quote somewhat misses the point about ALS (at least, absent dementia ). Yes, you will reach the point where you are paralyzed like the mother in the story, but you will never stop recognizing and valuing your loved ones. So his experience with his mother is not fully relevant to what he faces now.
 
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