what was your 1st symtoms? ALS/MND?

Curious as to what peoples stries are. How you are now? And now hindsite did you recignize small sytoms slowly...

Well incant speak for myself and hopefully I never will be able to, but my fathers started out with a twitch in his thumb he was veery very muscular used to do body building no steroids lol but it kept doing that small twitch for about 5 years slowly progressed to him being able to hold a hammer took 10 years to get diagnosed he has had it for 16 years can still walk and talk hit both his arms...but he is a strong stubborn man this thing won't beat him

Baxter, given the first symptom (5 years of twitching in one place), duration and still being functional after 16 years, I strongly doubt your father has ALS. There are other MNDs or even treatable ones that can mimic it..lack of bulbar involvement and so slow progression looks like MMN or something.

Well after he has seen countless neuros and ALS specialist they said it is 100% ALS. He was just very muscular and with gods help made it this far and can still function to a degree, but I would love to find out it was something else especially if it was treatable. But once you research a little longer you will find there are a lot of people out there with ALS who lasted even longer with ALS with no bulbar symptoms, ect. But I hope you don't have this disease and I will keep you in my prayers.

Use the search feature above. There are hundreds of stories here. Use your time not ours.

AL.