I have als mutation on fus gene

After watching 2 aunts, father,2 cousin suffer with this, I have about 2 years before I get sick according to family history and nothwestern university. the problem is what do I want to do for 2 years. awww the human condition

Enjoy the fulness of life, and serve your neighbor with what skills you have. Even if you don't end up with ALS, it won't have been wasted time.

anyone out there with fus mutation? anyone have als that has the filkins family in there family tree?