APL55
Active member
- Joined
- Jul 8, 2010
- Messages
- 81
- Reason
- PALS
- Diagnosis
- 03/2010
- Country
- US
- State
- Va
- City
- Woodbridge
Hi, I'm new to this so bear with me, on March 8 2010 my Dr. told me I have ALS,what led to this was back in 06 I started having numbness & stiffness in my left index finger which led to my arm & hand becomeing numb and my hand pretty much useless,After a MRI I was told I needed surgury on c4,5,6 in my neck had that done in 08, laid in bed for the rest of 08, because everytime I go out I'd feel worse, in August 09 I felt a little better and started going out and driving which I did till December, I kept calling my Dr about how I wasn't improving he finaly sent me for a EMG, had that done was told it wasn't normal, I got fedup with my Dr, and found one at VCU that said he would find out what was wrong,he did a EMG & lumbar puncture.The lumbar was normal but the EMG wasn't,which led to him telling me I have ALS,in March I was told my progression was slow,about 3wks ago I was trying to pull something out of my closet,since then everything has gotten worse in a hurry,I don't get the fatigue I read people talking about, my arms,hands,and chest get number and sometimes I loose feeling in my left hand and its only been late this year my right arm & hand are getting affected,my legs seem to come & go,I guess I'm wondering if any of you have any thing simular to what my symptoms are or could this be something else .Sorry for draging this out.