Hi all,
I had a terrible weekend, was crying all the time and I don't even have my ALS diagnosed spoken out by a neuro. I don't know how I'm going to cope with it when he does.
After 22.5 months of widespread twitching, 24/7 in calves and random there is a twich in my left upper back that doesn't stop; a very fine localized twitch (I also got the random still going on). Now my left shoulder, where the twiching is is getting weaker. The top of the shoulder hurts. My arm feels heavy, like when i'm driving etc. The weakness started 5 days ago.
Almost 2 years long I went to visits neuro's and they all said it would be BFS and than this. I even went to one 15th august and he said I'm fine (didin't have the localized twitching and weakness yet) I have no other explanation for the localized twitching that is now followed by weakness. I'll see my neuro back at the end of the month.
I had a terrible weekend, was crying all the time and I don't even have my ALS diagnosed spoken out by a neuro. I don't know how I'm going to cope with it when he does.
After 22.5 months of widespread twitching, 24/7 in calves and random there is a twich in my left upper back that doesn't stop; a very fine localized twitch (I also got the random still going on). Now my left shoulder, where the twiching is is getting weaker. The top of the shoulder hurts. My arm feels heavy, like when i'm driving etc. The weakness started 5 days ago.
Almost 2 years long I went to visits neuro's and they all said it would be BFS and than this. I even went to one 15th august and he said I'm fine (didin't have the localized twitching and weakness yet) I have no other explanation for the localized twitching that is now followed by weakness. I'll see my neuro back at the end of the month.