Hi, Nightwolf ... your English is great! You sound like a native speaker.
I think the speed of progression depends ultimately on factors outside our control right now ... I think there may be different "types" of ALS, just as there are different types of cancer, some fast progressing, some slow. But so far, my progression has been fairly slow, and these are the things I've done since my diagnosed. (But it was even slower before my diagnosed ...)
First: I gained weight. I'd lost 24 pounds in two years, and my neuro told me that regaining weight, or just not losing it in the first place, slows down the progression even more than Rilutek. So I gained back 10 pounds, and I am trying to maintain at a specific weight. Alas, I lost 3 pounds this week, so have added calories and hopefully will gain them back quickly.
Second: I discontinued statins (but that has only been recently). It's established that statins do not cause ALS, but it's also been established that statins make the symptoms worse.
Third: Since discontinuing statins a couple months ago, my "bad" cholesterol has gone up from 160 to 266 ... and it's my hunch that a higher cholesterol reading is healthier in ALS patients. I don't have any proof, but I've heard that mentioned on various forums. I also have heart disease, so we'll see which gets me faster ... ALS or my heart!
Fourth: I try to get a lot of protein every day. I use "muscle builder" protein supplements in my shakes. I have NO IDEA if that helps or not, but I figure it can't hurt me.
Fifth: On the advice of my insurance case manager, I have just recently upped my intake of Q-10 from about 30 mg a day to 400 mg, and I feel it's beneficial, but can't explain in what way ... just that I think I'm a little stronger.
I tried Rilutek, but it made my symptoms worse, so I discontinued it after a month.
But as I said, progression was slow for my first two years of symptoms, and these changes have all been in the last six months.