wewillbeatthis
Distinguished member
- Joined
- Aug 10, 2005
- Messages
- 185
Hello my ALS Family,
First off it has been so long since I have been on. For this I am sorry and will make it a point to come on more. I promise.
Well update on me we are having a boy and he is due in August!
Dad is doing well basically the same as he has been for the last five plus years until the last couple of weeks. Things have slowed at work and this is a stress for him because he worries so much about money and jobs coming in. Dad likes things to run smooth. When they don't he will dwell on it like you would not believe.
So this is how things have been since about last Saturday so we are going on 10 days. His voice has been very slow, a bit slurred, and nasal, gait very, very slow, and balence having to hold onto the walls or whatever around him a must, getting up from low positions like the low couch he used to sit on it and then swing himself over to the table and push himself up. He has been taking a bit longer to get up the steps.
So come this Sunday his voice was getting back to normal no slurring at all, slow but not really, and the nasal just about gone. When he drinks his water it is much, much better but he does not like to drink anything nor has he ever.
Walk a tiny bit better since Sunday as well and then today he was really holding onto the car when he was walking and then down he went lost his footing and or balence not sure which. Dad uses the rolator and does fine with that but uses the cane to get in and out of house and up and down the stairs and to move all over room to room. When he uses it he has it so far out to the side that just a tip of the cane is doing work for him and he has been told that is wrong but does not listen.
My question to everyone here is could this be the stress? Could things go back to the way they were little by little or do we have more going on here? How often should you do ROM, what other exercises should he be doing, and how much liquid should one drink, and lastly what is the correct way to hold the cane?
Is getting up from low places hard for anyone else? He is much better in chairs with arms he uses his arms to push himself up and down.
Does anyone else hold onto the walls or objects around them when walking and if so why and what does this mean?
I appreciate any feed back you can give. I am so scared right now I want dad to be ok and be around for a long time and when he has these bad weeks it just sets him off and I feel like things are getting bad. Can one have a flare up and then bounce back after the stress has gone?
Thanks for your answers.
Jen
First off it has been so long since I have been on. For this I am sorry and will make it a point to come on more. I promise.
Well update on me we are having a boy and he is due in August!
Dad is doing well basically the same as he has been for the last five plus years until the last couple of weeks. Things have slowed at work and this is a stress for him because he worries so much about money and jobs coming in. Dad likes things to run smooth. When they don't he will dwell on it like you would not believe.
So this is how things have been since about last Saturday so we are going on 10 days. His voice has been very slow, a bit slurred, and nasal, gait very, very slow, and balence having to hold onto the walls or whatever around him a must, getting up from low positions like the low couch he used to sit on it and then swing himself over to the table and push himself up. He has been taking a bit longer to get up the steps.
So come this Sunday his voice was getting back to normal no slurring at all, slow but not really, and the nasal just about gone. When he drinks his water it is much, much better but he does not like to drink anything nor has he ever.
Walk a tiny bit better since Sunday as well and then today he was really holding onto the car when he was walking and then down he went lost his footing and or balence not sure which. Dad uses the rolator and does fine with that but uses the cane to get in and out of house and up and down the stairs and to move all over room to room. When he uses it he has it so far out to the side that just a tip of the cane is doing work for him and he has been told that is wrong but does not listen.
My question to everyone here is could this be the stress? Could things go back to the way they were little by little or do we have more going on here? How often should you do ROM, what other exercises should he be doing, and how much liquid should one drink, and lastly what is the correct way to hold the cane?
Is getting up from low places hard for anyone else? He is much better in chairs with arms he uses his arms to push himself up and down.
Does anyone else hold onto the walls or objects around them when walking and if so why and what does this mean?
I appreciate any feed back you can give. I am so scared right now I want dad to be ok and be around for a long time and when he has these bad weeks it just sets him off and I feel like things are getting bad. Can one have a flare up and then bounce back after the stress has gone?
Thanks for your answers.
Jen