slopokahontas
Distinguished member
- Joined
- Sep 5, 2014
- Messages
- 116
- Reason
- PALS
- Diagnosis
- 08/2014
- Country
- US
- State
- Az
- City
- Tucson
I was diagnosed last Monday with ALS. It took a year of tests before my neurologist finally said he didn't have any more to run and sent me to the ALS clinic. I have 6 kids. 19,16,13,7,5, and 3. My mind races with all the things I want to and need to do. I'm 38 and had plans of being a crazy old lady (because they can get away with it) Plans now are to be crazy disabled lady! Leave it to me to not do the I've bucket challenge, but go big and get this life sentence instead! What do I do now? I can walk and talk for now. Do I build a ramp, record my voice, file for disability, find a nanny? I'm lost and feel like I've been spun and dropped into a deserted island where no one understands me. Three letters..ALS, to sum up the horror? Hardly seems adequate!