Hello everyone I am a 27 y/o male insured under Kaiser Permanente. They basically have no updated expertise on Lyme Disease, not even CFIDS (at least the one doctor who asked me, 'What is CFIDS?' Really?!)
==== My symptoms:
Overall body twitching, fasciculations
Full body atrophy: lips, mouth, ear canals, around the eye, scalp, tongue, gland under tongue, tonsils, opening behind tonsils, soft palate (roof of mouth, very atrophied), limbs, glutes, NOSE CARTILAGE, everywhere.
Burning pain on palms, feet and mouth, mostly palms and back of mouth.
Watery eyes always tearing up, cloudy vision occasionally.
Foamy urine (latest 24 hr protein test, "normal")
Tachycadia, Hypertension (both happened years prior to the above symptoms)
Acute headaches.
==== TESTINGS:
2 LIMB EMG/NCV no abnormalities found
Head MRI normal
Slightly elevated ALT, now improved (from 55 to 66 to 59 to 44 yesterday; normal levels is <39)
fatty liver found via ultrasound
ELISA = "negative" (Been asking for a Western Blot, some MDs refused)
It's been a really scary year for me with no answers and the doctors could not explain what's going on and simply dismissed all of this as "anxiety".
Currently Taking
Doxycycline 100mgx2
Astaxanthin
CoQ10 100mgx2-3
Magnesium
Grape Seed Extract 300mg
Gamma Tocopherol Vitamin E
I would appreciate any input from you all. Should I get the 4 limb test instead or irrelevant? Strength is "normal" they all say but they all seem to ignore the loss of TONE and mass. Could this be Lyme? Thanks very much. :'(
P.S. I am not afraid of dying per se but more so leaving my sister and mother alone since we are still not very financially stable (TMI: ...after having left by our father. So I try to fill in his shoes)
==== My symptoms:
Overall body twitching, fasciculations
Full body atrophy: lips, mouth, ear canals, around the eye, scalp, tongue, gland under tongue, tonsils, opening behind tonsils, soft palate (roof of mouth, very atrophied), limbs, glutes, NOSE CARTILAGE, everywhere.
Burning pain on palms, feet and mouth, mostly palms and back of mouth.
Watery eyes always tearing up, cloudy vision occasionally.
Foamy urine (latest 24 hr protein test, "normal")
Tachycadia, Hypertension (both happened years prior to the above symptoms)
Acute headaches.
==== TESTINGS:
2 LIMB EMG/NCV no abnormalities found
Head MRI normal
Slightly elevated ALT, now improved (from 55 to 66 to 59 to 44 yesterday; normal levels is <39)
fatty liver found via ultrasound
ELISA = "negative" (Been asking for a Western Blot, some MDs refused)
It's been a really scary year for me with no answers and the doctors could not explain what's going on and simply dismissed all of this as "anxiety".
Currently Taking
Doxycycline 100mgx2
Astaxanthin
CoQ10 100mgx2-3
Magnesium
Grape Seed Extract 300mg
Gamma Tocopherol Vitamin E
I would appreciate any input from you all. Should I get the 4 limb test instead or irrelevant? Strength is "normal" they all say but they all seem to ignore the loss of TONE and mass. Could this be Lyme? Thanks very much. :'(
P.S. I am not afraid of dying per se but more so leaving my sister and mother alone since we are still not very financially stable (TMI: ...after having left by our father. So I try to fill in his shoes)