WilliamS
New member
- Joined
- Oct 12, 2015
- Messages
- 2
- Reason
- Other
- Country
- US
- State
- Colorado
- City
- Denver
Hey everyone,
It's been a couple months since I've been here, previously I just browsed for information. I've had a downward spiral of symptoms and finally was able to get into a neurologist. I've been trying to keep a positive attitude. Life has been pretty cruel to me and I'd love some support. I've lost a few family members this year and have a very bad attitude about all of this. I am young compared to when those with ALS are typically diagnosed, but my symptoms are serious nonetheless
The nuero did an exam, saw the fasciculations and noted that I was hyper reflexive, and also had a clonus in my right leg. (the one that is feeling weak). I was hoping the appointment would put my mind at ease, but she said this isn't a normal occurrence and suggested an EMG. I've ruled out quite a bit of other diseases.
I originally went in for sudden full body fasiculations, progressively slurred speech (It's very hard to hold a conversation, stumbling over words or just outright unable to say things). Problems with voice and swallowing, Right leg weakness, as in I can't walk around the block without the leg burning as if I overexerted it, other times it just feels almost limp, and spasticity / cramping all over are what I've been experiencing. I have felt an almost burning / tingling sensation in my face from time to time, which I understand could point away from ALS?
This thread described my symptoms to a tee, which is also frightening to me:
https://www.alsforums.com/forum/do-i-have-als-als/8846-sudden-speech-problems.html
Very upset and scared. I really need support, I have no one left.
It's been a couple months since I've been here, previously I just browsed for information. I've had a downward spiral of symptoms and finally was able to get into a neurologist. I've been trying to keep a positive attitude. Life has been pretty cruel to me and I'd love some support. I've lost a few family members this year and have a very bad attitude about all of this. I am young compared to when those with ALS are typically diagnosed, but my symptoms are serious nonetheless
The nuero did an exam, saw the fasciculations and noted that I was hyper reflexive, and also had a clonus in my right leg. (the one that is feeling weak). I was hoping the appointment would put my mind at ease, but she said this isn't a normal occurrence and suggested an EMG. I've ruled out quite a bit of other diseases.
I originally went in for sudden full body fasiculations, progressively slurred speech (It's very hard to hold a conversation, stumbling over words or just outright unable to say things). Problems with voice and swallowing, Right leg weakness, as in I can't walk around the block without the leg burning as if I overexerted it, other times it just feels almost limp, and spasticity / cramping all over are what I've been experiencing. I have felt an almost burning / tingling sensation in my face from time to time, which I understand could point away from ALS?
This thread described my symptoms to a tee, which is also frightening to me:
https://www.alsforums.com/forum/do-i-have-als-als/8846-sudden-speech-problems.html
Very upset and scared. I really need support, I have no one left.