Jackfishem
Member
- Joined
- Dec 29, 2015
- Messages
- 22
- Reason
- Lost a loved one
- Diagnosis
- 12/2014
- Country
- US
- State
- LA
- City
- Lake Charles
Mom dx with FTD-PPA in 2014, restrictive lung disease and ALS in 2015, and COPD in 2016. We switched out her cpap for a bipap in January. Mom only uses the bipap to sleep. It's normal for her to get out of breath with the slightest bit of activity, but today I noticed something concerning. When she inhaled, she had the indentation above her collar bone that is seen in asthmatics and is a sign of respiratory distress.
I have a few questions for y'all with experience. Is this just normal disease progression? Is this something I need to report to her caregivers? Is this a sign that mom might need her bipap during the day? If so, does she just use it for a few minutes, like a breathing treatment?
It's really hard to google answers with all the complicated words to be searched. Any guidance y'all could provide would be appreciated!
I have a few questions for y'all with experience. Is this just normal disease progression? Is this something I need to report to her caregivers? Is this a sign that mom might need her bipap during the day? If so, does she just use it for a few minutes, like a breathing treatment?
It's really hard to google answers with all the complicated words to be searched. Any guidance y'all could provide would be appreciated!