Hayleywart
Member
- Joined
- Oct 18, 2009
- Messages
- 17
- Reason
- Loved one DX
- Diagnosis
- 08/2009
- Country
- UK
- State
- Aberdeenshire
- City
- Aberdeen
My Mum was dignosed with ALS in August, and is progressing rather quickly. She lives with us and I am her primary carer. I have looked into her family history, and while her dad and her grandad both died young (non MND related) I have also found no evidence of anyone else having it in the family.
However, I just can't get away from the feeling that I have it too - which terrifies me as then my kids may also get it.
My Mum's MND did not start with the text book symptoms. It started with tingling in her hands and feet, weakness in her right arm, but also a lot of pain in her right arm and shoulder. Then the fasiculations came etc, etc.
I have been getting loads of fasiculations, which of course could well be stress. I have also been getting a lot of pins and needle type tingling, but I have read that could also be stress. But now I have started with pain in my arm and shoulder too. I don't know whether I am just having 'sympathy symptoms' and working myself up into a state, or if there is a chance I my actually have it too. I try to console myself by reasoning that if we do both have it, it is highly unlikely that we would both actually get it at the same time. But perhaps the stress is triggering it off. I can't sleep at night, and get into terrible panicky states which I just can't get out of.
Can anybody offer me any words of wisdom?
However, I just can't get away from the feeling that I have it too - which terrifies me as then my kids may also get it.
My Mum's MND did not start with the text book symptoms. It started with tingling in her hands and feet, weakness in her right arm, but also a lot of pain in her right arm and shoulder. Then the fasiculations came etc, etc.
I have been getting loads of fasiculations, which of course could well be stress. I have also been getting a lot of pins and needle type tingling, but I have read that could also be stress. But now I have started with pain in my arm and shoulder too. I don't know whether I am just having 'sympathy symptoms' and working myself up into a state, or if there is a chance I my actually have it too. I try to console myself by reasoning that if we do both have it, it is highly unlikely that we would both actually get it at the same time. But perhaps the stress is triggering it off. I can't sleep at night, and get into terrible panicky states which I just can't get out of.
Can anybody offer me any words of wisdom?