latzable
Member
- Joined
- Nov 16, 2008
- Messages
- 15
- Reason
- Learn about ALS
- Country
- CH
- State
- Switzerland
- City
- Zurich
Hej everybody, especially Wright who seems to have a anormous knowledge here;-)
I am new here, a swiss guy, age 39, who has widespread, random fasciculations since 8 weeks now. It all began after a treatment of an infected toe with antibiotics. After that docs found a big lymphnod in my armpits which needed to be biopsied. During this pressure and fear of cancer, fasics started. I have been to the swiss ALS-clinic to do a neurological exam and an EMG, 4 weeks after the onset of fascics. They told me that there is no evidence of ALS and I do not have to come back as they have diagnosed me with BFS (benign fasciculation syndrom). My question has certainly already been discussed and discussed again. I know that people with an initial clean EMG who have been diagnosed with ALS later were people with UMN-outbreak, predominant UPM-outbreak or bulbar. The neuro at the ALS-clinic told me that they would have seen minor changes in the EMG even before the fascics showed up. I am seeking for reassurance and get doubts when I hear sayings that an EMG can be done too early. Would 4-5 weeks after the onset of fascics be enough to detect ALS in the EMG if done in all four limbs accurately? Has ever anyone heard that an EMG refering to ALS might be done too early?
Best wishes, Latzable
I am new here, a swiss guy, age 39, who has widespread, random fasciculations since 8 weeks now. It all began after a treatment of an infected toe with antibiotics. After that docs found a big lymphnod in my armpits which needed to be biopsied. During this pressure and fear of cancer, fasics started. I have been to the swiss ALS-clinic to do a neurological exam and an EMG, 4 weeks after the onset of fascics. They told me that there is no evidence of ALS and I do not have to come back as they have diagnosed me with BFS (benign fasciculation syndrom). My question has certainly already been discussed and discussed again. I know that people with an initial clean EMG who have been diagnosed with ALS later were people with UMN-outbreak, predominant UPM-outbreak or bulbar. The neuro at the ALS-clinic told me that they would have seen minor changes in the EMG even before the fascics showed up. I am seeking for reassurance and get doubts when I hear sayings that an EMG can be done too early. Would 4-5 weeks after the onset of fascics be enough to detect ALS in the EMG if done in all four limbs accurately? Has ever anyone heard that an EMG refering to ALS might be done too early?
Best wishes, Latzable