IPLEX Petition

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gbrown

Active member
Joined
Jun 13, 2008
Messages
77
Reason
PALS
Diagnosis
07/2006
Country
US
State
Virginia
City
Bassett
There is a petition which was started by the people on the ALS/TDI Forum to get the
FDA and Congress to allow the drug IPLEX to be distributed to PALS. This drug was taken off of the market due to a law suit by a rival company that distributes another drug that is similar but does not help ALS. The Italian government has started a study using IPLEX on ALS patients. No word on any results yet.

The petition is at www.thepetitionsite.com/petition/127840940. Please forward to everyone on your email list. PALS should have the optoion of any drugs that may help.

Thanks,
Gordon
 
Hi everyone,
we, i.e. some of the people from the mailing list - have set up another petition, demanding immediate access to Iplex for all patients.

http://www.petitiononline.com/iplex/petition.html

Please support us and spend a minute to sign this petition. We fight for all PALS out there. Give them a voice and hope.
Take care
Claudia
 
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