juliesmile
Active member
- Joined
- Feb 20, 2008
- Messages
- 61
- Reason
- Loved one DX
- Diagnosis
- 03/2008
- Country
- US
- State
- CA
- City
- Borrego Springs
My husband is 55 and has been experiencing progressive muscle weakness resulting in foot drop, his left leg has significant muscle atrophy, he has twitching which I can feel and see yet he doesn't notice. No pain no tingling no numbness. We've been to neurologist had EMG on left leg which shows significant nerve damage, had right leg done after I noticed unsteadiness, and it shows nerve damage. He has no symptoms in his right leg other than some weakness upon examination. He claims he doesn't feel the weakness at all. So needless to say we had the upper extremeties done and the Dr. was ambiguous, but we got copies of the tests and in his comments and he calls them inconclusive but abnormal.
Maybe I'm being overly concerned, but none of this sounds good. We are now in the hands of a specialist at U.S.C. Dr. named Beydoun. His speciality is Myasthenia Gravis. Will he be qualified to diagnose A.L.S. if that's where we are headed. Is it common for Dr's to dance around the A.L.S. diagnosis? Both neurologists when asked flat out if it could be A.L.S. say they don't think it's A.L.S. but can't rule it out. What else can it be? Is there anyone else out there with similar symptoms and what has your Dr. said?
Maybe I'm being overly concerned, but none of this sounds good. We are now in the hands of a specialist at U.S.C. Dr. named Beydoun. His speciality is Myasthenia Gravis. Will he be qualified to diagnose A.L.S. if that's where we are headed. Is it common for Dr's to dance around the A.L.S. diagnosis? Both neurologists when asked flat out if it could be A.L.S. say they don't think it's A.L.S. but can't rule it out. What else can it be? Is there anyone else out there with similar symptoms and what has your Dr. said?