It's official,I guess?

Went to my neurologist in Barrie this afternoon. Well it looks like I have an official it looks like it's heading towards an ALS diagnosis according to him. He still wants to do more tests, but based on the neuro's findings at Sunnybrook it can't be anything else. I think I'm ok, kinda knew it was coming. My wife's a mess. The kids are confused. It doesn't feel any different from yesterday. One day at a time...............

I am sorry. You are right one day at a time is the only way. It has taken you a while to get to an almost diagnosis. Hoping this means very very slow progression.
We are here for you. Always

The diagnosis is a tough one to accept Vincent and the 'almost' doesn't help. Even though you knew it was coming, it is still going to move through your family in particular now. I think it is easier for the CALS and kids to remain in a bit more denial until the diagnosis because we aren't 'experiencing it' in our own bodies.

Maybe your wife would join the forum too and talk to other CALS here, that may help her a lot.

Wish we weren't welcoming you in though.

So sorry Vincent, for you and your whole family. I also had it figured out a month before official diagnosis. It made it somewhat easier to move into acceptance and determination to not waste a single moment with friends and family.

Sorry to hear that. You're right, kinda knew it was coming. Sorry.

so sorry Vincent that you had to join the club that no one wants to be a part of. I am still working my way through anger to acceptance, so give it some time. We are all here for you.

So sorry Vincent, I knew what was coming before the doc said the actual dreaded words! ( CELEBRATED) my 2yr anniversary on Saturday, can only hope for slow progression, Anne xx

Welcome aboard the "Love Boat"........I also knew it was coming, but was holding out for a miracle.
Good luck on the next few months......

I am sincerely sorry to see you here Vincent. But welcome anyhow!

> I also knew it was coming, but was holding out for a miracle

We are all holding out for a miracle. The only point when a miracle is not possible is when you're dead, so don't throw in the towel until there's no other choice. I believe Max said "while there's life there's hope"!

As Mark implied the next few months will be truly difficult. Things will even out and become a new but gradually changing 'normal'.
If you've not done so reach out to your local ALS Society.

>Went to my neurologist in Barrie this afternoon. Well it looks like I have an official it looks like it's heading towards an ALS diagnosis according to him

well, welcome ... kinda. I recommend ALWAYS getting a 2nd opinion from an ALS specialist. check w/ your local mnd/als/mda associatiobs for recommendations.

regardless, you will be on an emotional roller coaster for the next weeks/months. so will your family. You can learn a great deal from the folks here, yell, scream, cry, whine (I prefer wine), and possibly find some humor.

your can find more about folks in the blogs. If you lke kid & dogs, visit mine which are always unfinished .

try to go with the flow of your emotions and try to share with someone. I didn't for the first 4 months and I am now sure it would have helped.

And lastly, eat a Snickers bar for me today -- and think of me with every chomp!



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Max - Thursday, September 18, 2014 12:09:11 PM
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onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013
It Is What It Is ...

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Greetings, Vincent!

This is the very finest group of people you'd never want to be associated with for the reason that brings you here. In fact, the caliber of person here has given me cause to wonder if ALS is "good people selective" because they are all so absolutely wonderful. Your attitude of working with "one day at a time" will serve you well. For my PALS, Darcey, and for me... recognizing that we could influence and control how we attacked today, making it the very best it can be... took away a lot of the energy draining worries that resulted from dwelling on all the possibilities associated with tomorrow. Or at least, that is what is working for us. I hope you find that which works well for you and yours. I hope you will continue to be active in your participation here. The real strength here is in our collective experiences and shared knowlege...

Jim

> And lastly, eat a Snickers bar for me today -- and think of me with every chomp!

btw, that is not a joke. Do everything to maintain your weight! Weight loss and falls appear to hasten progression.

>btw, that is not a joke. Do everything to maintain your weight! Weight loss and falls appear to hasten progression.

that's right. high caloric diet, don't lose weight, keep a record.

Also, that was doubly not a joke -- I haven't eaten since feb., so I ask all who can to eat my urge of the day. football sats/suns are hell, but I can still drink beer

Sending you a hug Vincent. So sorry to hear the bad news. Kim

So sorry. If you or wife or kids need to talk please get in touch xo