Jayjmarc
Member
- Joined
- Aug 9, 2012
- Messages
- 17
- Reason
- Learn about ALS
- Country
- US
- State
- Pa
- City
- Irwin
Yes another EMG scheduled at UPMC Pittsburgh with Neuro next week. Had CK blood work yesterday. My Nuero who said I had Parkinson's has me seeing someone else. If you read my last thread you will know the craziness my life has been. Twitching has increased with weakness, lethargic, unmotivated, and horrible responses to any exercising. New Neuro is talking about a thing called Isaac's Disease. It is a rare NM auto immune deal. Also, looking at Stiff Man and Pompe Disease. He wants to see result of EMG. Atrophy on side including hand. I do want to mention some specific twitches in triceps, thighs, bottom of feet and my damn nose. The nose has been driving me nuts on both sides of the bridge. Also, burning sensation when holding anything including steering wheel. Oh well, thanks to all on the last thread. Just wanted to give a quick update. Peace and God Bless to all.