Status
Not open for further replies.

Jayjmarc

Member
Joined
Aug 9, 2012
Messages
17
Reason
Learn about ALS
Country
US
State
Pa
City
Irwin
Yes another EMG scheduled at UPMC Pittsburgh with Neuro next week. Had CK blood work yesterday. My Nuero who said I had Parkinson's has me seeing someone else. If you read my last thread you will know the craziness my life has been. Twitching has increased with weakness, lethargic, unmotivated, and horrible responses to any exercising. New Neuro is talking about a thing called Isaac's Disease. It is a rare NM auto immune deal. Also, looking at Stiff Man and Pompe Disease. He wants to see result of EMG. Atrophy on side including hand. I do want to mention some specific twitches in triceps, thighs, bottom of feet and my damn nose. The nose has been driving me nuts on both sides of the bridge. Also, burning sensation when holding anything including steering wheel. Oh well, thanks to all on the last thread. Just wanted to give a quick update. Peace and God Bless to all.
 
LEt us know what they decide.

Sounds like it's not ALS--which is great news--even if something else going on.
 
I hope they sort it out and most of all that they find something treatable!
 
Status
Not open for further replies.
Back
Top