Recommendations for Neuro/ALS Center (NY)

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nomoreALS

New member
Joined
Nov 7, 2012
Messages
2
Reason
Loved one DX
Diagnosis
10/2012
Country
US
State
NY
City
Constable
Hi,

Would anyone recommend an ALS center in NY state or even in the general Northeast area? I know there an ALS center in Syracuse NY, but I cant seem to find anyone who has been there. My father is considering a trip the Mayo Clinic in Jacksonville, Florida. We have an appointment there for the end of the month, but its shaping up to be both a difficult and expensive trip. Specifically, my father is interested in experimental treatments, but he would also like a second opinion on his ALS diagnosis.

I'd appreciate any related stories or anything you may be able to offer. Thanks!
 
i go to the ALS clinic in Syracuse. They are wonderful. Dr Shefner is a leading researcher and the new cochair dr gruis is a respiratory specialist. I feel very fortunate to be here.
 
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