dkschulte
New member
- Joined
- Apr 19, 2012
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 03/2012
- Country
- US
- State
- IL
- City
- Troy
Hello,
my wife has been battling dementia for about a year or so and was just recently diagnosed with FTD and ALS when she was unable to swallow and speak. They inserted a PEK feeding tube recently and we are feeding her at home.
We have run into issues of trying to provide comfort and support for her that do not involve food or Drink! She spends some days at an adult day care and the workers there are wondering how best to handle situations where a volunteer or outside might bring in food or drink for the group. They do not want to have her feel too left out during these times?
It is hard to communicate with her to get her feelings for these situations. Anyone have any suggestions?
Dave
my wife has been battling dementia for about a year or so and was just recently diagnosed with FTD and ALS when she was unable to swallow and speak. They inserted a PEK feeding tube recently and we are feeding her at home.
We have run into issues of trying to provide comfort and support for her that do not involve food or Drink! She spends some days at an adult day care and the workers there are wondering how best to handle situations where a volunteer or outside might bring in food or drink for the group. They do not want to have her feel too left out during these times?
It is hard to communicate with her to get her feelings for these situations. Anyone have any suggestions?
Dave