Can you go to an ALS clinic and get a second opinion? If they tell you no ALS would you believe them?
AL.
I went to 6 neuros... 2 neuromuscular experts..
6 neuros perform Mri and blood exams...
1 Neuromuscular done biopsy after one week of gym cpk 3600... all normal dont have nothing go home. also done me the EMG in all four members and ncv in one arm all normal... except fasciulations in one member...
2 neuromuscular expert and als expert i said i was feeling bulbar symptons and i told him my storie... he saw me... with his tools open your mouth etc etc
dont know what it is but is no ALS. Psiko here i go...
Psiko says i dont have way to prove you that you dont have it butttttttt this is not normal regular person with girlfriend excelent job... cpk 3600.. and dont has nothing... wierd lets wait..
so i'm waiting waiting i have book again with the best als expert in july so lets wait... and see..
the answer to you question: is i allways come out of doc ofice convince that this will pass or that is nothing but symptons persist and evolute... and i dont know what to do..
i have read that cipro intox can cause all my symptons fluroquinolones... i took 3 boxes before all this...
and when i exposed my history someone said that cipro can do this... and that bla bla fluroquinolones victims etc etc
i talk to a doctor about it and he said me that this could happens cipro and neuro problems..
so i have something that´s a point: anxiety a little but not enough.. hypocondrya yes.. als dont know, cipro intox yes. will i belive in one doc NO. because all said that this will pass. and almost one year and still going to worst
i hate going to docs... so i have passed last 6 months and i dont went to neuros or others... i´m currently working.. well its life...
but if doc says again no als...doubt will persist because i havend done chest emg a place a feel week and bulbar... i could ask him to do.. but if i do that ... hypo again.. so its dificult. people around me you must go to doctor house bla bla.. i just think this people dont know what they are talking about.
there are no als clinics in portugal