muscle biopsy

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Everlast

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Will a patient with als have a normal muscle biopsy?
 
Not as far as I know.

AL.
 
My neuro told me it would show signs of ALS.
 
From my own experience, no. Maybe there are exceptions but not that I know of at this time.
 
i´m asking this because i think i have als.. but neuro says no way... i had cpk high 3600 they made me a biopsy all normal... i have fascisc mostly in one leg but they widespread... i having troaght problems voice problems.. but they all became after i google t... i'm a little afraid because i have tongue feeling stuck but i can move it... my symptons of traoght worst day by day i had emg but not bulbar ai have done ncv in one arm.... my cpk is all normal...

i´m stuck betwen cipro intox or als...


i dont know because if i get drunk or take cooffe or antidepressive or anxiety medicaments fascics get worst... and my traugh doesn t improve LOL so its harder for me to belive that isnt als...

Sorry bad english but in portuguese..

regards Jonh
 
Can you go to an ALS clinic and get a second opinion? If they tell you no ALS would you believe them?

AL.
 
Can you go to an ALS clinic and get a second opinion? If they tell you no ALS would you believe them?

AL.

I went to 6 neuros... 2 neuromuscular experts..

6 neuros perform Mri and blood exams...

1 Neuromuscular done biopsy after one week of gym cpk 3600... all normal dont have nothing go home. also done me the EMG in all four members and ncv in one arm all normal... except fasciulations in one member...

2 neuromuscular expert and als expert i said i was feeling bulbar symptons and i told him my storie... he saw me... with his tools open your mouth etc etc
dont know what it is but is no ALS. Psiko here i go...

Psiko says i dont have way to prove you that you dont have it butttttttt this is not normal regular person with girlfriend excelent job... cpk 3600.. and dont has nothing... wierd lets wait..

so i'm waiting waiting i have book again with the best als expert in july so lets wait... and see..


the answer to you question: is i allways come out of doc ofice convince that this will pass or that is nothing but symptons persist and evolute... and i dont know what to do..


i have read that cipro intox can cause all my symptons fluroquinolones... i took 3 boxes before all this...

and when i exposed my history someone said that cipro can do this... and that bla bla fluroquinolones victims etc etc
i talk to a doctor about it and he said me that this could happens cipro and neuro problems..

so i have something that´s a point: anxiety a little but not enough.. hypocondrya yes.. als dont know, cipro intox yes. will i belive in one doc NO. because all said that this will pass. and almost one year and still going to worst

i hate going to docs... so i have passed last 6 months and i dont went to neuros or others... i´m currently working.. well its life...


but if doc says again no als...doubt will persist because i havend done chest emg a place a feel week and bulbar... i could ask him to do.. but if i do that ... hypo again.. so its dificult. people around me you must go to doctor house bla bla.. i just think this people dont know what they are talking about.


there are no als clinics in portugal
 
Everlast ,

I think the time difference may have something to do with AL not responding back. Be patient , he always responds.

Which leads into the next statement: Do not believe everything you read on the net. You will make yourself crazy, stressed out. Stress can magnify symptoms , so relax if you can.

Fasics dont necessarily point to ALS. Yes , people with ALS have them , but people WITHOUT ALS also have them. I would not read much into them.

I am glad you are making an appointment with the top ALS expert in July. Currently , if the doctors are saying you do not have ALS , then be happy. You may have something related , but not having ALS gives you extra time to enjoy your life.

Relax , and enjoy every day.

Smile , it will make someone think you are up to something.

Glen
 
Everlast ,

I think the time difference may have something to do with AL not responding back. Be patient , he always responds.

Which leads into the next statement: Do not believe everything you read on the net. You will make yourself crazy, stressed out. Stress can magnify symptoms , so relax if you can.

Fasics dont necessarily point to ALS. Yes , people with ALS have them , but people WITHOUT ALS also have them. I would not read much into them.

I am glad you are making an appointment with the top ALS expert in July. Currently , if the doctors are saying you do not have ALS , then be happy. You may have something related , but not having ALS gives you extra time to enjoy your life.

Relax , and enjoy every day.

Smile , it will make someone think you are up to something.

Glen

Hey Glen

I already went to 2 neuromuscular especialist and they both say no als, but they were unable to give me answers why my cpk is high.. if i have a mri head to toes normal blood normal autoimune bones normal etc etc.. i currently working and but i´m experiencie fasciculations facial arms legs face... and some bulbar symptons in one eye my eyelid gets stuck also my eye sometimes i´m having troaght not eating but drinking and talking... í dont know if this feellings are because of what i have read... but i still dont know what to belive i dont belive in docs... they gave me vallium i take the double of the normal dose and symptons still persist and get worst...

my speech is relative normal but i have trouagh feeling wierd , i think i have slurred speech but i dont know if that is true... you know what i mean...

i also took cipro that is very toxic...

i dont have any atrophy visible, maybe chest atrophy i have pain there .... i´m in a fase of life that i+m doubting of my self because i dont feel wacky but docs are triying to make me...

my back my belly everything moves...

i had 3 EMG«s all normal i know that points out of als...
but never had bulbar emg... i dont know if that is made here in portugal....

well this is a life of a 26 year young man... scared its a fact but knowing the odds that als in unlikely at this age.. but if it is nt als something has to be.. but my question is... i have alredy done all exams... in world.... next exame is autopsy i guess

Thanks for your words.. and thanks for listening...

I know you get a lot of people it twich its als... i also know that everyone thinks they are not one of them... I just simply dont know.. i wish i would be one of them,,

regards
 
Sorry Everlast. Had a busy weekend and wasn't on much. If you've been to all those neuro's and they say no ALS I'd try to believe them. If there are no ALS Clinics there then you may have to go elsewhere to try to find out what is happening. Thinking about the symptoms can make them real to you and make something small much worse. It happened to me just after diagnosis. I thought I had excess saliva and choking. I convinced myself that I did. After 6 months of taking drugs to dry it up I realized that I didn't have that problem. I know the tricks the mind can play. You need to realize it too.

AL.
 
Sorry Everlast. Had a busy weekend and wasn't on much. If you've been to all those neuro's and they say no ALS I'd try to believe them. If there are no ALS Clinics there then you may have to go elsewhere to try to find out what is happening. Thinking about the symptoms can make them real to you and make something small much worse. It happened to me just after diagnosis. I thought I had excess saliva and choking. I convinced myself that I did. After 6 months of taking drugs to dry it up I realized that I didn't have that problem. I know the tricks the mind can play. You need to realize it too.

AL.

Hy AL
Thanks for answering... yes it s a fight inside my body, i want to belive that isn t als but its hard... i am still working... and fighting for it.... I also know that mind can make us feel everithing.
But i was always a sepctic person that always belive depression anxiety thats for wackys etc etc so its more hard to belive that its happening to me if its really happening you know what i mean?
I have took drugs for depression anxiety no improvement... My life has done 180degrees not talking to my father and mother because they belive more in docs that say i+m perfect and i dont agree... my relation with my girlfriend is deteorating... i dont want to be a dr. house case study,,, but people laugh about it like you are hypo bla bla... but in the bottom of my heart even that is not als ... i+m sure that something it is... because cpk 3600 when normal is under 180 that can t be psycologic... obvius after a google muscles moving troaght problems voilá ALS....

actually twiching trouagh problems feeling nouse and face muscles kind of dead but sensorial preserv,,, like i had a nose job plastic :S


Somedays i just dont have the will to get up... but i+m on my on have to work because of financial problems... i cry at night.... my syster had to abandon school because my dad and mom aford me all mri... so my life is completely ..... well no words... i´m crying wrinting this... but lets wait...

thanks AL and Glen for listening to me...
 
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