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nida1976

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Sep 29, 2015
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Loved one DX
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Gr
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greece
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Kavala
Hello again I am back after my six month journey since my fasciculation and other symptoms started, to inform you and discuss about my progression.
I am starting a new post because my previous is closed.

https://www.alsforums.com/forum/do-i-have-als-als/30137-strange-symptoms-worried-als.html

I have seen 4 different neurology professors in those six months and had 5 EMG/NVC
Last one was on March 16, none of them is an ALS specialist because there is none in my country just for ALS and also there is no clinic just for ALS.
They all know the disease (ALS) and they specialize in electromyography two of them with 25 years with experience in EMG/NVC and also teach at university electromyography in practice.

All EMG’s come back normal except that they record the fasciculation’s in my both calves left and right, More than twenty muscles were examined in my four limbs and on my shoulder.

Findings on EMG: the electromyography examination of the muscles show rare fasciculation’s of calf muscles left and right without evidence of active or chronic denervation.
Νot recorded any evidence of active neurogenic damage also no clear spontaneous activity that would suggest an infringement at the level of the anterior horn.
The maximum voluntary contraction diagram was complete in all muscles with normal morphology and amplitude motor units.

My main Problem is that my symptoms have not fallen at all but have spread throughout my body. The twitching is unstoppable 24/7 on my calf’s and feet. Also on the face, arms, legs, back, shoulders appear for a few seconds and then they stop but are becoming more frequent during every day.
Pain is another problem particularly in the feet and legs as in left shoulder and hand.
When trying to put strength in my hand or my foot my muscles trembling and tired easily.
I have also tremors in the left arm and leg even during calm.
I can also see muscle wasting in my left hand and feet because I know my body very well but doctors don’t really care about it because they say if it was wasting we would have seen in on EMG.

I am really desperate need some advice again how to proceed and what to do next.
Is it possible to be too early after six months with all these symptoms for EMG to find some nerve damage?

I really tried to get it out of my mind these six months, but the symptoms don’t let me calm.

Really thanks for your time and sorry bothering you again because I know how hard is for some of you to type and answer again and again.
 
Someone with your experience to advice or help with my situation.
 
I didn't expect so much support and answers thanks for your time anyway.
 
Nick, five neurologists and 4 EMGs have searched for ALS, but have not found any ALS.
There's really nothing an ALS forum can do for you.
 
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