- Joined
- Aug 28, 2013
- Messages
- 2,872
- Reason
- PALS
- Diagnosis
- 12/2018
- Country
- US
- State
- NC
- City
- Get Real
To those who fret they may have ALS. I do not recommend (my opinion) that you request your medical records. Your Neuro Doc went to college for as much as 8 years. Terminology alone may be well over your head unless you attended college 8 years for the same subject. Example; “Demyelinating Syndrome”… that’s an umbrella big enough to cover your neighborhood. And… I (assume) most Neuro Docs have their own personal notes which will not be in your medical records. It takes a lot of research to find what the normal parameters of a certain indication on an EMG is. The same for Nerve Conduction Tests. Blood test terminology is equally overwhelming. There’s other determining factors… age, weight, medications and other conditions only your neurologist can give proper analysis to. In many of my posts I urge patience during the diagnostic process. I also urge to temper your curiosity as hard as it may be to do.
Finally, I also believe (my opinion) medical records during a the diagnostic process are written in caution (fear) of possible future malpractice litigation, insurance company challenges and etc. So maybe “vague” is the key word. (Again, my opinion.) I have found peace in “Whatever it is… it is. I’ll get an update from my neurologist every two months.”
Finally, I also believe (my opinion) medical records during a the diagnostic process are written in caution (fear) of possible future malpractice litigation, insurance company challenges and etc. So maybe “vague” is the key word. (Again, my opinion.) I have found peace in “Whatever it is… it is. I’ll get an update from my neurologist every two months.”