Blubear
Senior member
- Joined
- Oct 24, 2009
- Messages
- 941
- Reason
- Lost a loved one
- Diagnosis
- 09/2009
- Country
- US
- State
- Wa.
- City
- Puyallup
Hi Forum Family! I have missed being here for a while, but just have a lot going on still with my daughter and my father. Here is my question for all your PEG meisters. My dad came back from his appt with his ALS specialist yesterday and found out that his FVC went from 95% to 64% just from the last visit! Also, he has lost 20lbs in the last year and his doc wants him to get a PEG ASAP. He is eating good still. The only thing he has problems with eating is lettuce. Now, I am all for getting a PEG, but I have watched Linda go through getting a PEG and not be able to bounce back like she thought she would, then Jay (rattman) got his done around Memorial Day weekend, and he still is not doing well. Kay Marie's husband got his and he to was never the same after. My dads doc said it would give him more energy and that is the only reason my dad wants to get it. I know that JeffP did really good when he got his and sadaemay's husband Les did well too, but they are younger. My dad is 70. So, the question is, if you got a PEG how was your recovery? Did you recover to the point of feeling better than before the PEG? Is it best to get it now because he will recover better than when his FVC is lower? Or is it better to still have "quality of life" for as long as possible before getting the PEG? Also, the doc said it will only be a day surgery and he will only have sedation so he wont remember it, and then a local for where the incision is made. Is that how you all had it done too? I am worried sick about this, and I just want my dad to have the best information out there as to what to expect. That information I want from my family here, as the doctors dont seem to give all the answers like from the people who have been through it.
Hugs in advance!
Kari
Hugs in advance!
Kari