Zaphoon
Extremely helpful member
- Joined
- Aug 2, 2008
- Messages
- 2,857
- Reason
- DX UMND/PLS
- Diagnosis
- 08/2011
- Country
- US
- State
- Missouri
- City
- Springfield
Every now-and-again, a newbie will respond to my old thread, "Undiagnosed Please Read This" and it will suddenly come alive again.
In that post, I had just returned from an appointment with a university neurology clinic after having my 2nd round of EMG/NCV testing in less than a month. I was told I did not have ALS but that they didn't know what I had. The referring neuro suspected PLS.
Fast forward from July/08 to Dec/08 and a V.A. neuro 2nd'd the opinion of PLS. Since that time, I have seen the V.A. about 5 times for various check-ups/follow-ups, testing, etc and the diagnosis of PLS has stuck (and appears to be stuck for a pretty long haul).
So, it doesn't appear that I'm going to be leaving the forum and besides that, Beth has forbidden me to do so.
As you know, I have been hard at work trying to develop a cure for PLS using an assortment of batteries, wires, needles, creams and elixers. No breakthroughs yet!
Zaphoon, PZ and Kim
In that post, I had just returned from an appointment with a university neurology clinic after having my 2nd round of EMG/NCV testing in less than a month. I was told I did not have ALS but that they didn't know what I had. The referring neuro suspected PLS.
Fast forward from July/08 to Dec/08 and a V.A. neuro 2nd'd the opinion of PLS. Since that time, I have seen the V.A. about 5 times for various check-ups/follow-ups, testing, etc and the diagnosis of PLS has stuck (and appears to be stuck for a pretty long haul).
So, it doesn't appear that I'm going to be leaving the forum and besides that, Beth has forbidden me to do so.
As you know, I have been hard at work trying to develop a cure for PLS using an assortment of batteries, wires, needles, creams and elixers. No breakthroughs yet!
Zaphoon, PZ and Kim