stuck and need advice
samnikolep posted some good questions. Most of the population that I used to work with had some type of neurodegenerative disease. Seborrheic dermatitis is a common comorbidity with these illnesses. The topical corticosteroid can be helpful, but you may want to try a few additional measures. A dandruff shampoo and comb or brush during your shower can be helpful if your scalp is involved, and I use it on my beard, as well. A soft brush or rough washcloth can be used on the face with a mild soap such as basis. If you have difficulty keeping it out of your eyes, baby shampoo can be used there. Sometimes a Rx skin cleanser can be helpful. I try to minimize the steroid use whenever possible, but as long as it is a mild one, it is safe for Intermittent, short term use.
The other complaint you may be experiencing sounds like urge incontinence. 20's is kind of young for prostate issues, so I won't belabor that. ALS can increase detrusor muscle tone, exacerbating that urge. Always consider lifestyle choices first. It was difficult, but I am down to just one cup of coffee a day now. All of the meds for urge incontinence that I am aware of are anticholinergic, with the exception of one. They can cause dry mouth, constipation, and other issues that may be more problematic in older people. I found the dry mouth intolerable, so my dr put me on the one exception, myrbetric. I also try to distract myself from the urge, and wait until it subsides before I stand up to go. I keep a urinal at bedside and when I travel.
There was also mention of ED. With all of the stress that comes along with a life changing diagnosis like ALS, this should come as no surprise. There are actually scholarly papers about the potential merits of PDE5 inhibitors like sildenafil and tadalafil in the context of neurodegenerative disease. Generic sildenafil can be purchased from US pharmacies for as little as 24 cents per pill now. It is unfortunate that there is not more discussion about sexuality and ALS.
Best of luck to you! Don't give up on the forums. There are many helpful people here.