sunshineandroses179
New member
- Joined
- Mar 18, 2019
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- KS
- City
- Manhattan
Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this.
I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind.
I have been to my PCP and had my reflexes on my legs checked and she checked the strength of my legs (nothing else). She said it all looked fine and figured my twitching was a result of vitamin deficiency or low iron or autoimmune things. However, my blood work all came back fine, so that's definitely not the case. I am to follow up with her, but I'm not sure when I'll get that appointment. My twitching has been going on for a few weeks now and I also think that my left leg/ankle area has been acting differently. When I walk or move in a certain way, it feels as if I'm rolling my ankle and having to put pressure on the outside of my foot in order to catch my balance. That is one of my biggest worries, coupled with the twitching. It's not just twitching, but the thought that my left leg/ankle is getting weaker.
Questions...
1. After reading the stickies and the previous posts, I realize that twitching in and of itself isn't a red flag. My question has to do with localized twitching and what that means. I have read that several people who were diagnosed ended up having localized twitching as the nerves were dying, then the twitching stopped after the nerve had died and moved to a new spot. If I'm having twitching in both calves, thighs, and abdomen areas, but in the same spot each time, is that considered localized and should I be more concerned about that type of twitching?
2. Is the Neuro exam from my PCP enough to tell me if my reflexes and strength tests are ok? If I already had twitching from dying nerves, would that show up in my reflexes? She mentioned doing some more imaging tests and then a referral to a neuro. However, if she thinks I'm strong and my reflexes are good, I'm ok with not going to the neuro if it's not really needed.
3. Could the fact that my ankle feels like it may give out on me and is causing me to walk differently be an indication that I have lost muscle there? Could it be that it's such a small muscle that I've lost, that I don't really notice it as much as if it were causing me to not be able to move my foot at all? I can still stand on my tip toes, walk on my heels, balance on one foot (even though it's more wobbly on the left side), and can still jump on both feet.
Thank you for taking the time to read this and give me your valued opinions. It means a lot to me.
Thanks!
I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind.
I have been to my PCP and had my reflexes on my legs checked and she checked the strength of my legs (nothing else). She said it all looked fine and figured my twitching was a result of vitamin deficiency or low iron or autoimmune things. However, my blood work all came back fine, so that's definitely not the case. I am to follow up with her, but I'm not sure when I'll get that appointment. My twitching has been going on for a few weeks now and I also think that my left leg/ankle area has been acting differently. When I walk or move in a certain way, it feels as if I'm rolling my ankle and having to put pressure on the outside of my foot in order to catch my balance. That is one of my biggest worries, coupled with the twitching. It's not just twitching, but the thought that my left leg/ankle is getting weaker.
Questions...
1. After reading the stickies and the previous posts, I realize that twitching in and of itself isn't a red flag. My question has to do with localized twitching and what that means. I have read that several people who were diagnosed ended up having localized twitching as the nerves were dying, then the twitching stopped after the nerve had died and moved to a new spot. If I'm having twitching in both calves, thighs, and abdomen areas, but in the same spot each time, is that considered localized and should I be more concerned about that type of twitching?
2. Is the Neuro exam from my PCP enough to tell me if my reflexes and strength tests are ok? If I already had twitching from dying nerves, would that show up in my reflexes? She mentioned doing some more imaging tests and then a referral to a neuro. However, if she thinks I'm strong and my reflexes are good, I'm ok with not going to the neuro if it's not really needed.
3. Could the fact that my ankle feels like it may give out on me and is causing me to walk differently be an indication that I have lost muscle there? Could it be that it's such a small muscle that I've lost, that I don't really notice it as much as if it were causing me to not be able to move my foot at all? I can still stand on my tip toes, walk on my heels, balance on one foot (even though it's more wobbly on the left side), and can still jump on both feet.
Thank you for taking the time to read this and give me your valued opinions. It means a lot to me.
Thanks!