Passive4356
New member
- Joined
- Dec 23, 2018
- Messages
- 2
- Reason
- Other
- Country
- US
- State
- MA
- City
- Boston
First, I want to say that I have been to this community off and on for the past week or so and have seen how incredibe you PALS and CALS really are. Thank you for doing something you certainly don’t have to do. This greatly helps people like me looking for some possible insight into their situation.
In late September of this year I started to feel a little off physically. I had been running a lot trying to lose a few pounds to no avail, but hey I just turned 30 so I chalked it up to the “downhill slide” of getting older. Yeah, no more easy weight loss and you’ll just feel weird and sore from here on out.
Then in October I started to have a strange pain in my right rib area that concerned me enough to to my GP. He said probably anxiety and stress as I did just quit my job with a wife and two children at home to look after. Then in November, it happened. Twitching all over! Thumbs, eyes, legs, calves, etc. Paresthesia (pins and needles, itching, cold, etc) in all of those same places. Mental confusion/fog. Dropping things. Tripping every now and then. Can’t find words, you name it.
I tend to be fairly neutral in these situations but I had to go to see the neuro. I have been to her before for an unrelated issue. She’s very reputable and has a great pedigree from an awesome school and years of experience, so I feel as though she’s pretty solid. I mention my symptoms to her. She taps on my knees while my feet are on the floor, makes me tap my fingers together on both hands, puts the vibrating thing on my hands and says... muscle bulks good, muscle tone is fine, how’s your life going?.... what the heck?!? I said fine, I quit my job but I got a new great one... what about these twitches and cold spells etc... she’s says it anxiety related. I’m referring you to a psychiatrist.
She was concerned enough to give me a NCV test. They did it in both my arms since I was concerned about my right hand. (I have a couple of extra creases in the thumb area) she claims my results were literally from a textbook case of picture perfect. Refuses to do an EMG. Gives me a referral to a psychiatrist.
My question is this... I’m twitching all over for about two months now... have pain and tenderness in my hand. Have dropped a million things it seems like, and I’m losing words a lot, etc. all things I’ve read could point to ALS. So should I go back and insist on an EMG.. I feel like she’s going to be furious if I do that. But, I’ve read way too many atories that say twitching first.. dropping stuff first, etc. my neuro swares she spent a whole year in ALS only during her school years, but I still feel like she’s not looking hard enough.
I’ve been testing myself like crazy... walking for 2 minutes on my toes on a treadmill, one minute on my heels. Doing heavy squats and bench press... carrying around weights between my thumb and forefinger to see which hand gives out first... I have a complete inability to enjoy these holidays with my 3 and 1 yr old because I’m researching this and picking up books with just two fingers and on and on and on....
I’ve read the big sticky, but I really feel a weakness in my hand and the twitching is so ridiculously everywhere... Any advice or possible comments would be greatly, warmly appreciated.
In late September of this year I started to feel a little off physically. I had been running a lot trying to lose a few pounds to no avail, but hey I just turned 30 so I chalked it up to the “downhill slide” of getting older. Yeah, no more easy weight loss and you’ll just feel weird and sore from here on out.
Then in October I started to have a strange pain in my right rib area that concerned me enough to to my GP. He said probably anxiety and stress as I did just quit my job with a wife and two children at home to look after. Then in November, it happened. Twitching all over! Thumbs, eyes, legs, calves, etc. Paresthesia (pins and needles, itching, cold, etc) in all of those same places. Mental confusion/fog. Dropping things. Tripping every now and then. Can’t find words, you name it.
I tend to be fairly neutral in these situations but I had to go to see the neuro. I have been to her before for an unrelated issue. She’s very reputable and has a great pedigree from an awesome school and years of experience, so I feel as though she’s pretty solid. I mention my symptoms to her. She taps on my knees while my feet are on the floor, makes me tap my fingers together on both hands, puts the vibrating thing on my hands and says... muscle bulks good, muscle tone is fine, how’s your life going?.... what the heck?!? I said fine, I quit my job but I got a new great one... what about these twitches and cold spells etc... she’s says it anxiety related. I’m referring you to a psychiatrist.
She was concerned enough to give me a NCV test. They did it in both my arms since I was concerned about my right hand. (I have a couple of extra creases in the thumb area) she claims my results were literally from a textbook case of picture perfect. Refuses to do an EMG. Gives me a referral to a psychiatrist.
My question is this... I’m twitching all over for about two months now... have pain and tenderness in my hand. Have dropped a million things it seems like, and I’m losing words a lot, etc. all things I’ve read could point to ALS. So should I go back and insist on an EMG.. I feel like she’s going to be furious if I do that. But, I’ve read way too many atories that say twitching first.. dropping stuff first, etc. my neuro swares she spent a whole year in ALS only during her school years, but I still feel like she’s not looking hard enough.
I’ve been testing myself like crazy... walking for 2 minutes on my toes on a treadmill, one minute on my heels. Doing heavy squats and bench press... carrying around weights between my thumb and forefinger to see which hand gives out first... I have a complete inability to enjoy these holidays with my 3 and 1 yr old because I’m researching this and picking up books with just two fingers and on and on and on....
I’ve read the big sticky, but I really feel a weakness in my hand and the twitching is so ridiculously everywhere... Any advice or possible comments would be greatly, warmly appreciated.