worriedmontreal
Member
- Joined
- Mar 2, 2018
- Messages
- 15
- Reason
- Learn about ALS
- Country
- CA
- State
- quebec
- City
- montreal
Hi All, can't believe I have arrived at this point. First let me say my heart goes out to all that have been diagnosed with this awful disease. I have the a ton of respect for all who work hard to support people like me with whatever they may be going through. I will try to keep this short.
March 2017, I experience blood in my urine. I start the medical process and for the next 3 months I have cystocopy, prostate MRI, abdominal ultra sound. Two lesions are found on my prostate and a prostate biopsy is performed (btw, I am a 42 year old at the time and father of 4). I get the news in June that there is no cancer and I am diagnosed with HGPIN. I then have 2 épisodes of rectal bleeding that throws me into a tail spin. I have several scans and a colonoscopy to rule anything out. So basically I had a rough start to the year with a lot of stress and anxiety. What brings me here stated in July also. Went for a walk and for the first time I felt my legs were a bit off. Felt weird around my hips. For the next 10 days I find myself knocked on my butt. Lost a few pounds, loss of appetite, vomiting, depressed. What a way to spend my vacation. Started feeling a bit better but the legs were still off. Went camping and felt fine. Hiking, camping, all the fun stuff. Went to see my doc in October about my tired feeling and wobbly legs. The day after I see her was the day I first notice my left calf slightly twitching. Here comes dr. Google and from that day forward it has been a living hell. Within 4-5 weeks I can feel twitching all over. I would say they are 60% in my legs and 40% all over. Arms, stomach, butt, thighs, back, face, even 1 on my head! The past week I had my right quad going crazy as soon as I relaxed. It went on for 3 or 4 days straight before it stopped. A couple days later my left quad in the exact same spot is doing the same thing. Hoping it stops soon. And they a huge! I can see my pants above the knee actuall move. They come and go but are usually felt daily. Cramps begin in both calves but not the kind of cramps that will make you scream. Just annoying. This has now gone on for 4 months. I am completely consumed by trying to figure out what is wrong with me. I have no weakness that I can tell but I am tired and my legs still feel off. I have never dropped anything or tripped or fallen. other little things I have noticed are the shakes (I hold a water bottle and within 10 second I am shaking. All 4 limbs do it. My shoulders feel heavy at some points but I am always able to do whatever I need. My next step is an EMG next month which I know will give me some answers. I thought in the mean time I would ask the opinions of the people that have lived this. Any reply or opinion would be so greatly be welcome. The stress and anxiety is killing me and affecting the house. All I seem to do is stare at my legs and freak out every time they twitch. Help!!!
March 2017, I experience blood in my urine. I start the medical process and for the next 3 months I have cystocopy, prostate MRI, abdominal ultra sound. Two lesions are found on my prostate and a prostate biopsy is performed (btw, I am a 42 year old at the time and father of 4). I get the news in June that there is no cancer and I am diagnosed with HGPIN. I then have 2 épisodes of rectal bleeding that throws me into a tail spin. I have several scans and a colonoscopy to rule anything out. So basically I had a rough start to the year with a lot of stress and anxiety. What brings me here stated in July also. Went for a walk and for the first time I felt my legs were a bit off. Felt weird around my hips. For the next 10 days I find myself knocked on my butt. Lost a few pounds, loss of appetite, vomiting, depressed. What a way to spend my vacation. Started feeling a bit better but the legs were still off. Went camping and felt fine. Hiking, camping, all the fun stuff. Went to see my doc in October about my tired feeling and wobbly legs. The day after I see her was the day I first notice my left calf slightly twitching. Here comes dr. Google and from that day forward it has been a living hell. Within 4-5 weeks I can feel twitching all over. I would say they are 60% in my legs and 40% all over. Arms, stomach, butt, thighs, back, face, even 1 on my head! The past week I had my right quad going crazy as soon as I relaxed. It went on for 3 or 4 days straight before it stopped. A couple days later my left quad in the exact same spot is doing the same thing. Hoping it stops soon. And they a huge! I can see my pants above the knee actuall move. They come and go but are usually felt daily. Cramps begin in both calves but not the kind of cramps that will make you scream. Just annoying. This has now gone on for 4 months. I am completely consumed by trying to figure out what is wrong with me. I have no weakness that I can tell but I am tired and my legs still feel off. I have never dropped anything or tripped or fallen. other little things I have noticed are the shakes (I hold a water bottle and within 10 second I am shaking. All 4 limbs do it. My shoulders feel heavy at some points but I am always able to do whatever I need. My next step is an EMG next month which I know will give me some answers. I thought in the mean time I would ask the opinions of the people that have lived this. Any reply or opinion would be so greatly be welcome. The stress and anxiety is killing me and affecting the house. All I seem to do is stare at my legs and freak out every time they twitch. Help!!!