Rellis76
New member
- Joined
- Apr 4, 2016
- Messages
- 6
- Reason
- Loved one DX
- Diagnosis
- 04/2016
- Country
- Us
- State
- Tennessee
- City
- Harriman
My mom passed away this past Thursday 04/13/2017 she went to Mayo in Fl. and participated in the bio marker research. She was tested and had the C9 gene her sister passed away 3 years ago with FTD. My mom only lasted a year after her diagnosis. She donated her brain and spinal cord. So I'm told that me and my brother have a 50/50 chance of inheriteing the C9 gene. Her Dr. Dr. Boylan wants me and my brother to participate in his study to help advance knowledge and possibly help with some type of treatment. Should I? I don't know if I want to know if I have the C9 or not. I want to know but I don't if that makes sense? I have a 11 year old son he is our only child and we will be having no more. Thoughts or opinions please!