pandr
New member
- Joined
- Jun 26, 2016
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- WI
- City
- Milwaukee
I posted about a month ago describing some symptoms I had been experiencing. Those included right sided weakness in from my shoulder down to my ankle. I also noted some apparent tongue twitching isolated to the center of my tongue. Working alongside my GP, we tested for deficiencies, had mri's done for the brain and cervical spine. I was slightly deficient in vitamin b12 and D, and both mri results were normal. I supplemented for B12 and D with B12 already stabilizing and D on the way up, but my symptoms have progressed.
After seeing a neurologist specializing in MS around that time (who ordered the cervical spine mri), he told me he saw nothing wrong with me.
Now a month later of me waiting to see if things would improve, my symptoms have really advanced.
- Full body weakness with notable decrease in muscle mass
(can still do everything, but some movements bring on considerable discomfort/pain)
- Random times during the day where Ill feel about 5 seconds of pulsating on my left knee
- Decrease most notable in upper limbs (my biceps feel like skin and bone)
- Difficulty lifiting arms over shoulders (pain after 5-10 seconds)
- Neck pain/stiffness
- Persistent apparent twitching still isolated to the center of my tongue
- Scalloped sides of tongue with bottom of tongue smooth and receding from top (almost as if the top is larger than bottom)
- indents in both sides of tongue that are very raw and burn
- difficulty speaking with frequent biting of tongue (although others have not noticed slurring), having to really focus on annunciating words
- Waking up every morning with thick, heavy feeling in mouth, tongue sore
I am only 20 years old, turning 21 next January. No family history. I have an appointment with a different GP the first week of September (looking for a fresh perspective on whatever this is)
Worth nothing that my very, very first symptoms were right-sided tingling and difficulty concentrating (both of which have subsided)
I am well and truly at a loss for what is going on.
After seeing a neurologist specializing in MS around that time (who ordered the cervical spine mri), he told me he saw nothing wrong with me.
Now a month later of me waiting to see if things would improve, my symptoms have really advanced.
- Full body weakness with notable decrease in muscle mass
(can still do everything, but some movements bring on considerable discomfort/pain)
- Random times during the day where Ill feel about 5 seconds of pulsating on my left knee
- Decrease most notable in upper limbs (my biceps feel like skin and bone)
- Difficulty lifiting arms over shoulders (pain after 5-10 seconds)
- Neck pain/stiffness
- Persistent apparent twitching still isolated to the center of my tongue
- Scalloped sides of tongue with bottom of tongue smooth and receding from top (almost as if the top is larger than bottom)
- indents in both sides of tongue that are very raw and burn
- difficulty speaking with frequent biting of tongue (although others have not noticed slurring), having to really focus on annunciating words
- Waking up every morning with thick, heavy feeling in mouth, tongue sore
I am only 20 years old, turning 21 next January. No family history. I have an appointment with a different GP the first week of September (looking for a fresh perspective on whatever this is)
Worth nothing that my very, very first symptoms were right-sided tingling and difficulty concentrating (both of which have subsided)
I am well and truly at a loss for what is going on.