rhgus
New member
- Joined
- Sep 7, 2011
- Messages
- 5
- Diagnosis
- 08/2011
- Country
- US
- State
- Va
- City
- Leesburg
Hi All
I am new to this and would like to know who you believe if your neurologist says one thing then your second opinion says another thing then your 1st changes his mind ?
Here is my problem:
Foot drop 4/11 went to doctor, blood tests, back and chest ex-rays Visited a neurosurgen ex-rays and said it wasn't a spine problem.
Had my first NCT and EMG.No diagnosis yet. I went to a neurologist 4/11 and he also did an EMG and NCT.
After this on the next visit he suggested it was ALS.Continued to follow up with him. After more EMG's he said I was ALS possible.
Got a second opinion 8/11 at ALS clinic in Jacksonville. Again more EMG'S and NCT. Received the diagnosis of ALS probable..
I got a brace to assist with walking( I was still walking OK but tripping occassionally (It did make a big difference)
Next visit to my neurologist 9/11 changed his mind and now its PLS . come back in 3 months or sooner if something changes.Next visit is Monday
Right now I have problems with lifting my foot towards my knee on the left foot (doesn't work at all) and limited ability lifting my right foot to my knee.
When I try to lift my left leg up (hip flexion) it does not go more than 2 or 3 inches up. Right leg flexion a lot better but still not normal.
I still can walk short distances ( with a very noticable wobble) and get up and down stairs when I have too, but try to limit it.
No other symptoms except constant leg and back twitching for about 5 months now.
I'm so confused !
I am new to this and would like to know who you believe if your neurologist says one thing then your second opinion says another thing then your 1st changes his mind ?
Here is my problem:
Foot drop 4/11 went to doctor, blood tests, back and chest ex-rays Visited a neurosurgen ex-rays and said it wasn't a spine problem.
Had my first NCT and EMG.No diagnosis yet. I went to a neurologist 4/11 and he also did an EMG and NCT.
After this on the next visit he suggested it was ALS.Continued to follow up with him. After more EMG's he said I was ALS possible.
Got a second opinion 8/11 at ALS clinic in Jacksonville. Again more EMG'S and NCT. Received the diagnosis of ALS probable..
I got a brace to assist with walking( I was still walking OK but tripping occassionally (It did make a big difference)
Next visit to my neurologist 9/11 changed his mind and now its PLS . come back in 3 months or sooner if something changes.Next visit is Monday
Right now I have problems with lifting my foot towards my knee on the left foot (doesn't work at all) and limited ability lifting my right foot to my knee.
When I try to lift my left leg up (hip flexion) it does not go more than 2 or 3 inches up. Right leg flexion a lot better but still not normal.
I still can walk short distances ( with a very noticable wobble) and get up and down stairs when I have too, but try to limit it.
No other symptoms except constant leg and back twitching for about 5 months now.
I'm so confused !