Kristina1
Senior member
- Joined
- Jan 26, 2017
- Messages
- 822
- Reason
- PALS
- Diagnosis
- 03/2017
- Country
- US
- State
- MA
- City
- Grafton
...im probably not the only one whose done this.
March 5th will be the one year anniversary since my diagnosis. I had a clinic visit today. I said to my doctor "it's been one year, and I'm still doing fairly well, are you sure it's ALS?" And then she told me yes, it's definitely ALS, and she said she sees me as progressing at a medium rate...not fast, but not super slow either. She said my progression to date was fairly typical of what she sees with a lot of her patients. I've always told myself "at least I'm progressing slowly" but it sounds like my idea of 'slow' turns out to be more like 'average.'
It's silly that I even asked. But sometimes I still feel she's going to tell me some visit that it's all been a terrible mistake.
March 5th will be the one year anniversary since my diagnosis. I had a clinic visit today. I said to my doctor "it's been one year, and I'm still doing fairly well, are you sure it's ALS?" And then she told me yes, it's definitely ALS, and she said she sees me as progressing at a medium rate...not fast, but not super slow either. She said my progression to date was fairly typical of what she sees with a lot of her patients. I've always told myself "at least I'm progressing slowly" but it sounds like my idea of 'slow' turns out to be more like 'average.'
It's silly that I even asked. But sometimes I still feel she's going to tell me some visit that it's all been a terrible mistake.