Hello everyone,
First I would like to say hello to all the new members. I am still having alittle trouble navagating this site, but I am getting better. There is so much to read I find myself getting on this site and just reading.
My husband and I went to Ann Arbor, MI this week for the final appointment with the diagnostitian. We were there for two days. He had an emg and a mri. The emg confirmed the diagnosed of ALS. The MRI was to rule out any other things that may be going on. The MRI was negative. My husband started out with pain in his right leg March 17,2007 and was Diagnosed April 25, 2007. His is famial ALS and the criteria to warrent testing is alot less than with sproadic. Now from our first appointment April 13, 2007 the Dr was alittle hesitant to say much. At that time Bob only had alot of pain in his right thigh. And he was walking without alot of trouble. From that date to April 25th he has no feeling in his right leg from his thigh to his calf and needed to hold onto my arm so he would not fall. Even the Dr was surprised by the progression in two weeks time. The emg showed extensive nerve damage in his right leg and none in his left. It also showed denervation from lumbar 5 down. Any thoughts about the progression?
They called in 3 other Dr's for consult and all came to the same conclusion. Just last night we were at the table talking and he said "I just had shooting pains in my toes." That is very distrurbing to me and I am afraid.
I will say that the staff in Ann Arbor are very good and we were very comfortable there. We are now going to be going to the clinic there also. We do live 3 hours away but I think it will be worth the drive. Besides who doesn't want to go for a ride on a nice sunny day? Bob does have other symptoms but they are not promiment yet. Now for the kicker to all this. We found out last night that Bob's cousin Ann, who passed away in Feb this year, had the forsite to have the gene testing done. It was positive for the SOD1 gene. Any thoughts?
Sincerely Pat
First I would like to say hello to all the new members. I am still having alittle trouble navagating this site, but I am getting better. There is so much to read I find myself getting on this site and just reading.
My husband and I went to Ann Arbor, MI this week for the final appointment with the diagnostitian. We were there for two days. He had an emg and a mri. The emg confirmed the diagnosed of ALS. The MRI was to rule out any other things that may be going on. The MRI was negative. My husband started out with pain in his right leg March 17,2007 and was Diagnosed April 25, 2007. His is famial ALS and the criteria to warrent testing is alot less than with sproadic. Now from our first appointment April 13, 2007 the Dr was alittle hesitant to say much. At that time Bob only had alot of pain in his right thigh. And he was walking without alot of trouble. From that date to April 25th he has no feeling in his right leg from his thigh to his calf and needed to hold onto my arm so he would not fall. Even the Dr was surprised by the progression in two weeks time. The emg showed extensive nerve damage in his right leg and none in his left. It also showed denervation from lumbar 5 down. Any thoughts about the progression?
They called in 3 other Dr's for consult and all came to the same conclusion. Just last night we were at the table talking and he said "I just had shooting pains in my toes." That is very distrurbing to me and I am afraid.
I will say that the staff in Ann Arbor are very good and we were very comfortable there. We are now going to be going to the clinic there also. We do live 3 hours away but I think it will be worth the drive. Besides who doesn't want to go for a ride on a nice sunny day? Bob does have other symptoms but they are not promiment yet. Now for the kicker to all this. We found out last night that Bob's cousin Ann, who passed away in Feb this year, had the forsite to have the gene testing done. It was positive for the SOD1 gene. Any thoughts?
Sincerely Pat