ktmj
Distinguished member
- Joined
- Oct 17, 2008
- Messages
- 421
- Country
- US
- State
- Dixie
- City
- Redneck
Hi everyone - have not posted in a while but have been keeping up with everyone.
Over the last few months I've been able to control my fears at a manageable level and life has been good, even with progressing symptoms. As a quick update, my level of weakness has progressed some, muscle shaking increased with exertion, and bothersome after exertion. I perceive that muscle slimming has continued in limbs and shoulders. Fine motor skills are off some, and balance is still affected to some degree but not noticeable to anyone. Doubt I have any clinical weakness yet - I am way past self-testing. Won't even mention twitching other than to say it has increased but it is really the least of my concerns.
I am still highly functional - thank God for that.
Here is possibly a new symptom - some minor burning sensations in my hands, lower arms, and legs. It is not constant, and comes and goes, but as I sit here and type this the upper part of my legs feel like a mild sunburn. This sensation can come and go, and can be accompanied or independent with some minor tingling.
Also, all of my symptoms have been symmetric - no one limb is better or worse than the other that I can perceive. I keep trying to convince myself it is CIDP but of course it could be many things at this point. Still concerned about ALS, but try not to dwell on it.
I guess I just needed to put it down in writing and am open for any perspective on the "sensory" deal. I know there can be mild sensory issues with ALS, but have no idea if this fits any pattern of anything.
At any rate God bless and thanks for reading.
Over the last few months I've been able to control my fears at a manageable level and life has been good, even with progressing symptoms. As a quick update, my level of weakness has progressed some, muscle shaking increased with exertion, and bothersome after exertion. I perceive that muscle slimming has continued in limbs and shoulders. Fine motor skills are off some, and balance is still affected to some degree but not noticeable to anyone. Doubt I have any clinical weakness yet - I am way past self-testing. Won't even mention twitching other than to say it has increased but it is really the least of my concerns.
I am still highly functional - thank God for that.
Here is possibly a new symptom - some minor burning sensations in my hands, lower arms, and legs. It is not constant, and comes and goes, but as I sit here and type this the upper part of my legs feel like a mild sunburn. This sensation can come and go, and can be accompanied or independent with some minor tingling.
Also, all of my symptoms have been symmetric - no one limb is better or worse than the other that I can perceive. I keep trying to convince myself it is CIDP but of course it could be many things at this point. Still concerned about ALS, but try not to dwell on it.
I guess I just needed to put it down in writing and am open for any perspective on the "sensory" deal. I know there can be mild sensory issues with ALS, but have no idea if this fits any pattern of anything.
At any rate God bless and thanks for reading.