jonur
New member
- Joined
- Mar 7, 2019
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- New Jersey
- City
- Wayne
Hi everyone.
I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it with what I'm about to say since I don't have official news about anything yet. But I feel that I need to vent since I don't have too many people to talk about it with, and if someone wants to respond, please do..but not if it takes up too much of your time or energy.
A few months ago, I started feeling very tired in my arm muscles (both arms). It freaked me out a bit, but I got over it, and it went away for a while. Two weeks ago, I woke up with a stiff shoulder/neck, and I haven't been able to shake off the stiffness, it's never been this bad before. I've tried different pillows etc., and nothing works, but it's gotten better. I couldn't move my head to look right and now I can and it's fine but the pain is slightly there.
Today I started loosing my voice/became strained/raspy, but I do have a stuffy nose so it could be a cold, but then I'm like maybe that's too coincidental, and I also started feeling a burning feeling on my right left-on my thigh-like a burning sensation every 20 minutes or so.
I brought it up with my GP and she told me it was probably a pulled muscle, but my grandma died of ALS, so I am scared of it, and it's put me in a very anxious state of mind, because Google shows so many symptoms that I feel like I have. Sometimes when I am brushing my hair in the morning, my arms get tired so I have to stop and then do it again... are these things the onset symptoms? I don't want to talk about it with my mom because it brings up the sadness with her mom (she's the grandma who had ALS). Even though my GP said not to worry, I made an appointment with a neurologist for Monday.
I've also noticed my fingers feel stiffer, especially when it's cold, so I just don't know... I don't know what to think what else it could be or if these are symptoms that sound like it could be ALS.
Thank you in advance for any responses...
I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it with what I'm about to say since I don't have official news about anything yet. But I feel that I need to vent since I don't have too many people to talk about it with, and if someone wants to respond, please do..but not if it takes up too much of your time or energy.
A few months ago, I started feeling very tired in my arm muscles (both arms). It freaked me out a bit, but I got over it, and it went away for a while. Two weeks ago, I woke up with a stiff shoulder/neck, and I haven't been able to shake off the stiffness, it's never been this bad before. I've tried different pillows etc., and nothing works, but it's gotten better. I couldn't move my head to look right and now I can and it's fine but the pain is slightly there.
Today I started loosing my voice/became strained/raspy, but I do have a stuffy nose so it could be a cold, but then I'm like maybe that's too coincidental, and I also started feeling a burning feeling on my right left-on my thigh-like a burning sensation every 20 minutes or so.
I brought it up with my GP and she told me it was probably a pulled muscle, but my grandma died of ALS, so I am scared of it, and it's put me in a very anxious state of mind, because Google shows so many symptoms that I feel like I have. Sometimes when I am brushing my hair in the morning, my arms get tired so I have to stop and then do it again... are these things the onset symptoms? I don't want to talk about it with my mom because it brings up the sadness with her mom (she's the grandma who had ALS). Even though my GP said not to worry, I made an appointment with a neurologist for Monday.
I've also noticed my fingers feel stiffer, especially when it's cold, so I just don't know... I don't know what to think what else it could be or if these are symptoms that sound like it could be ALS.
Thank you in advance for any responses...
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