Hi everyone. I would greatly appreciate your advice. Four months ago out of the blue, the index finger on my dominant hand started moving On its own. It started pulling outward towards my thumb. Only happened three times the first day and I wasn't very concerned. By the weekend I was having hundreds of these involuntary movements a day. My middle finger was also stuff and I also had periods of uncontrollable laughing and crying.
I went to my Dr who did what I felt was a very odd test because she didn't even look at my finger. She felt the muscles on my arms and looked in my mouth, and told me she wanted me to see a neurologist. She was on the phone with him before I even made it out of her office. The paper she gave me said "dx UMN syndrome and hand spasticity".
It took almost two months but I finally got to see the neurologist. He wanted to run a bunch of tests for things like lupus, Lyme, cancer, ms, vitamin deficiency and a few others. All tests came back good except for a 5mm pineal cyst on MRI that he says is not causing my symptoms. He wants to do an EMG and says ALS is a possibility.
since my initial symptoms I've had all over frequent twitching of muscles, exhaustion (I can't do things i used to, my body just isn't willing), stiffness and some cognitive issues.
I don't think this is ALS. It's too rare. It's got to be something else. But being told you are being tested for a fatal disease is so overwhelmingly terrifying. Please give me your opinions.
I went to my Dr who did what I felt was a very odd test because she didn't even look at my finger. She felt the muscles on my arms and looked in my mouth, and told me she wanted me to see a neurologist. She was on the phone with him before I even made it out of her office. The paper she gave me said "dx UMN syndrome and hand spasticity".
It took almost two months but I finally got to see the neurologist. He wanted to run a bunch of tests for things like lupus, Lyme, cancer, ms, vitamin deficiency and a few others. All tests came back good except for a 5mm pineal cyst on MRI that he says is not causing my symptoms. He wants to do an EMG and says ALS is a possibility.
since my initial symptoms I've had all over frequent twitching of muscles, exhaustion (I can't do things i used to, my body just isn't willing), stiffness and some cognitive issues.
I don't think this is ALS. It's too rare. It's got to be something else. But being told you are being tested for a fatal disease is so overwhelmingly terrifying. Please give me your opinions.