esjcollege08
Member
- Joined
- Mar 4, 2012
- Messages
- 26
- Reason
- Learn about ALS
- Diagnosis
- 12/2012
- Country
- US
- State
- MT
- City
- Nowhere
Have read a ton of different information on ALS. Probably best to get clarification from you all.
For the past year or so, I have experienced a lot of weird, unexplained, neurological symptoms. Started with muscle fasciulations all over. I'm pretty sure those were BFS, but just keep in mind that something wasn't neurologically "right"
Shortly thereafter i started experiencing problems with balance and perception. Felt like I weighed more, felt like I was being pulled down to the floor, felt like the floor was pushing me up as I walked, felt like some phantom was pushing me along as I walked. It has remained somewhat constant since October, hasn't really progressed, but hasn't gotten any better either. could the heaviness be because of muscle weakness in my legs? I've never lost the ability to walk, I don't have any foot drag, I can walk on my toes and heels etc....just feels weird.
Over the past 2 weeks I have begun having trouble swallowing. I will admit, the first incident was two weeks ago, and it seemed to go away until 2 days ago when it has really gotten noticeable. I can get the food in the back of my mouth, but there is hesitation to swallow. It feels like the muscles just dont want to work. I eventually get it down but it takes a while.
And now have started to notice subtle changes in my voice. I've been testing my voice by saying sentences out loud and have noticed difficulties. Im pretty good at speaking spanish but rolling my "r's" has become harder...
So to the questions:
-can you go from difficulty swallowing to the beginning of difficulty with speech in a few weeks?
- Were the issues with balance and muscle twitching in my extremities the beginning of limb onset ALS, but then it decided effect my swallowing simultaneously without having fully diminished my ability to use my limbs? In other words, how common is bulbar and limb onset simultaneously?
-Can balance problems in ALS come before muscle atrophy? Does the disease attack your balance center? Or is the reason for loss of balance due to muscle atrophy?
Thank you
For the past year or so, I have experienced a lot of weird, unexplained, neurological symptoms. Started with muscle fasciulations all over. I'm pretty sure those were BFS, but just keep in mind that something wasn't neurologically "right"
Shortly thereafter i started experiencing problems with balance and perception. Felt like I weighed more, felt like I was being pulled down to the floor, felt like the floor was pushing me up as I walked, felt like some phantom was pushing me along as I walked. It has remained somewhat constant since October, hasn't really progressed, but hasn't gotten any better either. could the heaviness be because of muscle weakness in my legs? I've never lost the ability to walk, I don't have any foot drag, I can walk on my toes and heels etc....just feels weird.
Over the past 2 weeks I have begun having trouble swallowing. I will admit, the first incident was two weeks ago, and it seemed to go away until 2 days ago when it has really gotten noticeable. I can get the food in the back of my mouth, but there is hesitation to swallow. It feels like the muscles just dont want to work. I eventually get it down but it takes a while.
And now have started to notice subtle changes in my voice. I've been testing my voice by saying sentences out loud and have noticed difficulties. Im pretty good at speaking spanish but rolling my "r's" has become harder...
So to the questions:
-can you go from difficulty swallowing to the beginning of difficulty with speech in a few weeks?
- Were the issues with balance and muscle twitching in my extremities the beginning of limb onset ALS, but then it decided effect my swallowing simultaneously without having fully diminished my ability to use my limbs? In other words, how common is bulbar and limb onset simultaneously?
-Can balance problems in ALS come before muscle atrophy? Does the disease attack your balance center? Or is the reason for loss of balance due to muscle atrophy?
Thank you