Peter999
New member
- Joined
- Jul 27, 2017
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- SK
- State
- SK
- City
- Nitra
Hello
I have some health problems for 5 months now and it is destroying me.
And I have some questions for you to clarify what docs could not. It started with twitching in legs mostly in thighs and calfs but it became widespread. Next I started felling a weakness after some sport activities. Like cycling. i used to cycle a lot but now I am able to go on bike for few minutes and then I feel like I was in a gym hitting all day without a break. After few visits in hospitals, they did everything but with no results except EMG. I was told that I have small lower motor neuron lesion. And then I started to worry about ALS because Mr. Google says LMN lesion is associated with ALS. But after all they told me that I have benign fasciculation syndrome and some neuropathy and I am a very stressful person and I should see a psychologist and prescribed me a milgamma ( On US sites it says it is for diabetes but here in Europe it is used to cure some nerve disorders, pain, neuropathy etc...) After taking it for a week the twitching was mostly gone and I could also bike normally again. But right now after almost 2 weeks I can feel the twitching again. It is not that bad like before but it is slightly worsening over time. i have some questions for you guys
1) If I would have ALS (Hope I don't) could some simple meds like this improve the symptoms like this?
2) Is there some improvement with basic meds in ALS?
3) Why the symptoms improved that well and after almost 2 weeks it is getting worse again?
4) Is this how ALS starts or are those symptoms familial with ALS?
My docks unfortunately told me nothing because simply they don't know. ALS is a very rare disease here and I doubt they have not seen a person with ALS.
Thank you for your time. Peter
I have some health problems for 5 months now and it is destroying me.
And I have some questions for you to clarify what docs could not. It started with twitching in legs mostly in thighs and calfs but it became widespread. Next I started felling a weakness after some sport activities. Like cycling. i used to cycle a lot but now I am able to go on bike for few minutes and then I feel like I was in a gym hitting all day without a break. After few visits in hospitals, they did everything but with no results except EMG. I was told that I have small lower motor neuron lesion. And then I started to worry about ALS because Mr. Google says LMN lesion is associated with ALS. But after all they told me that I have benign fasciculation syndrome and some neuropathy and I am a very stressful person and I should see a psychologist and prescribed me a milgamma ( On US sites it says it is for diabetes but here in Europe it is used to cure some nerve disorders, pain, neuropathy etc...) After taking it for a week the twitching was mostly gone and I could also bike normally again. But right now after almost 2 weeks I can feel the twitching again. It is not that bad like before but it is slightly worsening over time. i have some questions for you guys
1) If I would have ALS (Hope I don't) could some simple meds like this improve the symptoms like this?
2) Is there some improvement with basic meds in ALS?
3) Why the symptoms improved that well and after almost 2 weeks it is getting worse again?
4) Is this how ALS starts or are those symptoms familial with ALS?
My docks unfortunately told me nothing because simply they don't know. ALS is a very rare disease here and I doubt they have not seen a person with ALS.
Thank you for your time. Peter