Reke165
New member
- Joined
- Aug 18, 2016
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- IL
- City
- Chicago
Hello, I will try to keep this short. I appreciate any incite. I understand that no one can give a diagnosis, but next steps would be helpful.
My symptoms began around the beginning of 2016. I had some facial twitching particularly in my jaw area that stayed pretty consistent. This was followed by twitching in my arms and legs. I also noticed that when I smiled my left side of my smile was lower than my right.
I was not concerned when everything started happening, but after a month of continuous symptoms I decided to see a doctor and was told to see a neurologist. My neurologist appointment came and I was given all the strength tests and passed them.
I was told that for precautions I should be given an EMG. This was done on my arms and legs. The arms were clean, but the legs came back with some fasciculations. The neurologist said that this is normal and I should relax. He has had me follow up with him on a semi-monthly basis.
When I asked him about the smile, he said it could be a minor case of bells palsy and to not worry about it.
So, for the last 5 months I have been dealing with the twitching in multiple areas and the crooked smile. I am worried that since my EMG was not completely clean and it wasn't tested on the bulbar area that this could be bulbar ALS showing as weakness in my left side of my face. Should I be concerned and ask my neurologist to test the bulbar area?
I ask him about ALS and he said he dosent believe that it is that.
Thank you again for your advice.
My symptoms began around the beginning of 2016. I had some facial twitching particularly in my jaw area that stayed pretty consistent. This was followed by twitching in my arms and legs. I also noticed that when I smiled my left side of my smile was lower than my right.
I was not concerned when everything started happening, but after a month of continuous symptoms I decided to see a doctor and was told to see a neurologist. My neurologist appointment came and I was given all the strength tests and passed them.
I was told that for precautions I should be given an EMG. This was done on my arms and legs. The arms were clean, but the legs came back with some fasciculations. The neurologist said that this is normal and I should relax. He has had me follow up with him on a semi-monthly basis.
When I asked him about the smile, he said it could be a minor case of bells palsy and to not worry about it.
So, for the last 5 months I have been dealing with the twitching in multiple areas and the crooked smile. I am worried that since my EMG was not completely clean and it wasn't tested on the bulbar area that this could be bulbar ALS showing as weakness in my left side of my face. Should I be concerned and ask my neurologist to test the bulbar area?
I ask him about ALS and he said he dosent believe that it is that.
Thank you again for your advice.