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Caliburn

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Feb 27, 2013
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Learn about ALS
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RI
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Lincoln
so, neuro said all my tests came back "absolutely normal", including emg's done 2 months ago (which i already knew). he tested my knee reflexes today and said they were a bit "brisk" but i told him i hadnt taken my benzo's yet today and he said thats probably why. anyways, his working diagnosis is bfs, but he referred me to a neuro who specializes in movement disorders so it looks like its time for more doctors appointments. he was interested in the fasciculations in my face and perineum, and i think thats what prompted him to refer me to the specialist.

just figured id let yall know what was up

Cheers,
Caliburn
 
I am glad its is not als, bfs is annoying but treatable. Good luck. Peace and best wishes.
 
thanks vickim ^.^ ill let you know if anything develops with the movement-disorder neuro.
 
I just love reading good news! Anything but ALS is good news in my book!

Truly thrilled for you.

Don't be a stranger -
 
Wonderful news! Obviously it would be even wonderfuller if all the symptoms went away, so I have my fingers crossed for you :)
 
im trying a gluten-free diet starting today because Celiac runs in my family. could be that this is all from a gluten allergy. ill let yall know how i make out :D

thanks for the continues support everyone!
 
Keep us posted. Good luck!
 
Let us know if the movement disorder neuro comes up with anything. I have that same "smile tremor" that you mentionned and the same thing in my legs and shoulder, my neuro wasnt concerned about this very much.
 
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