nicolea
Member
- Joined
- Mar 22, 2016
- Messages
- 18
- Reason
- Learn about ALS
- Country
- US
- State
- WA
- City
- Seattle
Hello, I haven't posted for quite some time. It appears my prior post had been closed. Sorry if that is inaccurate and I'm posting out of turn. So I got married and the wedding/honeymoon is finally behind me. I have been doing very well with not researching the internet for things on ALS and why I think I have it. I've been going to PT and that has helped (kind of) I've also been going to a counselor whom I love...but my symptoms keep finding a way of driving me crazy. I am still able to do nearly everything I have ever been able to do....when I hold my child in my left arm though, it feels as though my arm goes 'dead' it hurts and will twitch. If I bend my arm in any way it will start jumping/dancing and twitching away. My right foot/leg feels like it is constantly twitching/jumping/vibrating/buzzing LIKE CONSTANTLY. I get cramps in that foot at times too (they are not severe, but enough to bother me) The twitching is pretty consistent, but the weakness I feel in my arm and foot/leg are bothersome. I also notice if I do anything somewhat active, the next day I am sore and hurting. I moved my office furniture around by myself (not smart) and the next day my arms were hurting TERRIBLY. I feel like I can see atrophy in my left hand and right foot, but that could just be my eyes playing tricks on me. I am SO disappointed in myself for looking back on the internet but for some reason I am experiencing a relapse in my worry/anxiety about this. My specialist appointment is still 6 months out! I don't know what to do at this point. Does any of this sounds like ALS? I also feel like I could sleep 10 hours and still feel tired the next day. I get hard thumping twitches in my neck at times. But the constant buzzing/twitching in my foot/calf and the pain in my arm and hand/twitching is really the part that freaks me out. I can still walk on my tiptoes and heels. When I blow dry my hair or use my arms...my left arm is noticeably weaker than my right. It begins to burn and ache after too much use. I'm sorry this turned into a book....any feedback would be greatly appreciated! The twitching/pain has been ongoing for about 6 months now.