pudge44
Distinguished member
- Joined
- Dec 29, 2010
- Messages
- 195
- Reason
- PALS
- Diagnosis
- 12/2010
- Country
- US
- State
- NH
- City
- Keene
Hubby and I decided to get the medical dictations from all his recent exams so when we see the ALS specialist next week we have them in hand.
I see a lot of talk about the nerve conduction test being an important part of the process of out ruling ALS & perhaps diagnosing another disease, this is what his nerve conduction test said ( will not type the whole thing and keep in mind my husband has speech and swallowing and drooling ).
Doctor stated acute and chronic denervation changes in three extremities, with possibility of multifocal conduction block, upper motor neuron signs along with fasciculations, doctor also mentioned see fibrillations noted in his tongue & quadriceps, also when asked to walk on heel or toe my husband could walk on heels but not on toes ( is this a sign ?).
They mention mostly his right side having marked weakness and upper extremities especially near the neck area, anyway I am hoping that because it is only 3 areas showing weakness that he does not fly under the als banner, but I am also realistic that the above very well could be ALS they do mention Lou Gehrig in the dictation but as probable, it seems like we have a lot of doctor visits to find out what it is and we ar not to happy about it as time of diagnoses is sooooo important for this disease :0(
Your input is valuable please write back with your experience HUGS!
I see a lot of talk about the nerve conduction test being an important part of the process of out ruling ALS & perhaps diagnosing another disease, this is what his nerve conduction test said ( will not type the whole thing and keep in mind my husband has speech and swallowing and drooling ).
Doctor stated acute and chronic denervation changes in three extremities, with possibility of multifocal conduction block, upper motor neuron signs along with fasciculations, doctor also mentioned see fibrillations noted in his tongue & quadriceps, also when asked to walk on heel or toe my husband could walk on heels but not on toes ( is this a sign ?).
They mention mostly his right side having marked weakness and upper extremities especially near the neck area, anyway I am hoping that because it is only 3 areas showing weakness that he does not fly under the als banner, but I am also realistic that the above very well could be ALS they do mention Lou Gehrig in the dictation but as probable, it seems like we have a lot of doctor visits to find out what it is and we ar not to happy about it as time of diagnoses is sooooo important for this disease :0(
Your input is valuable please write back with your experience HUGS!