diagnosed2016
Distinguished member
- Joined
- Apr 30, 2016
- Messages
- 190
- Reason
- Lost a loved one
- Diagnosis
- 07/2016
- Country
- US
- State
- CA
- City
- California
My husband was told yesterday that he has motor neuron disease based on symptoms (drop foot twitching) and the neurologist has referred him to an als center for a confirmation. 4 out of 6 family members on his fathers side died of ALS. It doesn't look hopeful. He is in his early 40s and we have two young children under 4. We are devastated. I keep reading to live in the moment and not jump to the worst but I have no idea how we even proceed from here. I literally cannot imagine how to cope with the variables of this disease and how to go about not crying every moment of every day.