marymunson
New member
- Joined
- Apr 28, 2015
- Messages
- 9
- Reason
- CALS
- Country
- US
- State
- az
- City
- phoenix
I need any insight I can get my dads symptoms started in may 2012 with weakness in his right hand now he is a complete paraplegic but his breathing is totally normal and he swallows with no issues. Back in 2012 my dad had a cancerous tumor removed from his vocal cord, the cancer scare made my dad quite drinking. My dad is not a drunk by any means but he has suffered with Rheumatoid Arthritis since he was 17 years old so his joints are shot for the most part, he has two artificial hips and other artificial joints. My dad would drink to calm the pain but when he found out that he had the cancer on his vocal cord he stopped drinking cold turkey and that is when the weakness and falling started. My dad was referred to a neurologist and they thought Wernicke–Korsakoff syndrome (WKS), anyways that was wrong so he went to another neurologist and after a couple tests that doctor said my dad had CBGD which is in the Parkinsons family. So after that diagnosis we went to the Mayo clinic and they said that it is not CBGD but classical Parkinson's so my dad started to take sinemet and other parkinson's meds but my dad continued to decline. After several months of going to the Mayo clinic the neurologist finally sent my dad to get another EMG (ones in the past came back negative)because she said that she was noticing weakness after the results from that EMG came in she told us that she could no longer help and she referred us to an ALS clinic and my dad has been going there for almost a year and yesterday at his appointment while the doctor was examining him he was very confused then he had the Physicians assistant come in and she was super confused my dad said that he was seeing double vision and his vision is blurred so she examined his eyes and was saying something about his face no longer being symmetrical. I am so frustrated because we ended the appointment with my dad's ALS doctor saying he wasn't sure if my dad had ALS or Parkinson's he said for diagnosis he would keep ALS but that my dads case was so off and confusing that he just doesn't have an answer.
I am the one that takes care of my dad with my mom and things are already so hard but the uncertainty is killing me PLEASE HELP
I am the one that takes care of my dad with my mom and things are already so hard but the uncertainty is killing me PLEASE HELP