tajmom
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  • Jen, I Just popped in to say "hi" . I miss reading your posts, understand why you don't (of course) I hope you and your family had a good holiday season. ((hugs)) xx
    Jen, I was so sorry to read that you can't type. I hope that as "Queen", the servants will also be court typists, taking down your every word. (who could bear that???) Yes, I just was reading your blog. Wishing you and your family well,
    Ann
    Hi Jen, see you are on now, Is everything all right? Check out Rose thread, our friendly neighborhood watch.
    Jenn, I'm glad at least there was no added drama! I sincerely hope your air-conditioning is working, is it HOT or what! Thankfully we finally got some rain yesterday, All of the other "isolated" thunderstorms roving the area isolated themselves somewhere other than my yard. I hope he continues to heal up. ASAP, so as to get all the extra carers on their way away :)
    Hey Jenn,

    How did your hubby's sx go? I hope things are coming along at your household as smoothly as they can be.
    Good

    I'll drop you a note when its actually in the mail to you (they have not gotten here yet) ((hugs))
    Hi Jennifer,

    Did you get my private message? If you did, and you're not interested in what I talked about, its really a-okay, just let me know one way or the other. thanks :)
    Hi Jennifer! I am still in AZ and having a good time spending time with my parents. Its been in the 80's so it will be hard to go home to 55-60 in Washington state. I am burnt crispy!! I over did at the pool today. I look forward to talking to ya when I get back to work on Thursday. They BETTER have confirmed that room, or they will have my wrath!! haha.....Hugs to you hun....Kari
    Hi Jennifer. I mentioned in a post in January that my husband is going to be seen by the ALS Clinic at Johns Hopkins. You told me you are being seen by them and how happy you were with them. We now have an appt for next month. I am counting down the days. I am truly anxious about this because his progression past 8 to 10 months has been very progressive.
    Jennifer, How do I friend you? There is nothing on the left! I voted on your blog :]
    Hi Jennifer, I'm going to be having an ALS Clinic very close by. The one at Hopkins would be 2 and a half hours away. It's really great that you're being helped so much there! It was so kind of you to reach out. I hope you're doing ok... Better than ok!
    Ann
    Dear Tajmom,

    I am sorry about your having ALS. I pray for a miracle for you of complete remission.

    I have symptoms, but no diagnosis. Where did you go for your diagnosis? Would you kindly share the name of your diagnosing physician? How long did you have symptoms? I have lower facial droop that goes totally ignored by the MDs. The corners of my mouth recently drooped. Walking, balance issues, fatigue, weakness, breathing troubles at night, swallowing, hoarseness etc. Don't know where to go, what to do about my worsening symptoms. Please help if you can. Thanks

    Weakandfalling
    Hi...
    Just saw your thread on being part of the talampanel trial. Would you mind if I asked you a few questions about your journey? My husband has, what appears to be sporadic ALS. Most of the forum PALS I've met, seem to have bulbar onset, and their symptoms are quite different than my husbands, and from the little I read, yours seems closer in similarity.

    I hope I'm not being too intrusive. If you're not comfortable, then I completely respect and understand!

    Peace,
    Melody
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