4mymom

About the lack of help,Chris, they probably don't know what they are doing because of the rarity of the disease.Persist in trying to get them to help,someone that has specifically worked with MND before.
That's the challenge!

I'm so glad you are doing that for her.You don't know how much that helps with everything.I wish she would get out in the sun at least 20 minutes a day.Major depression lifter.Vitamin D from the sun helps calcium absorb so is helpful for the bones,too.The stretching is helping her as a comfort measure and circulation,which can help her whole body and mind.Keep up the good work!Chris, you might have a calling in the health care arena.

Let me know how everything is going.Are you OK?

It don't know what services she has, but any hospice or nursing agency should be able to get her meds for her fears and frustrations,that is if she's not like my Dad who was Christian Scientist, and very
against any meds.Is she able to do stretching type exercises at all.You are such outstanding son.How are you faring?Love, Charlotte

Hay, Let me know how you are holding up?Thinking of you.Your friend, Charlotte

Your mother is so LUCKY. I know she would agree. The illness is nothing compared with the knowledge of your love..
My live in man/carer who has been with me for 8 years, upped and left with another woman last weekend so I am having to have more strangers around the house to help. I want my family but while my daughter is here for a week no they live in UK and no way can I live with any of them, sadly. So yep! Your mother is lucky. You are one fine son.
Loads of love to you all. GIve her a kiss and a hug from me, please

I am so sorry about your mom's bad week. I am no longer using my bipap. Hoping to die peacefully from lack of oxygen. when I was little I lived in a city that was heavily bombed by the GErmans and we were supposed to wear gas masks during the bombing in case they dropped mustard gas bombs. The memory of the horror when my parents tried to pàutb this huge horrible rubber mask over my face is still vivid. They never suddeeded in getting it on me and somehow I link the bipap with that memory. I hate it.
My dogs are all rescues, one half boxer, all black , and the other two more like alsations than anything else. I had a collie until v recently but she was 16 and I lost her too. too much loss. But I suppose that is what happens in old age. Tho i was not a bit old in spite of years before this damend illness.
Doe your mother need help in the night? I wear a diaper at night not to disturb and take half a bromazepam which really helps the sleep.
Lots of love and admiration coming your way

Chris, you are one fine man and I would be so proud if you were my son. As it is I am proud you are my friend. Believe me, the support oof people like you has had an enormous effect on me. Why cry over a complete bastard who would do such a thing when there are all these worthy and wonderful people who support me with love. I love you and thank you
My dogs are quite old - big dogs, 10,9,8 but they should live a few years yet and they must be happy. The rat had promised to stay here and look after them after my death so they are my biggest problem (as well as my most important joy) now. If only I knew when i am going to die so I could fix things better!
Too much lost this weekend. I shall never be able to believe Linda is not here any more. We used to write every day.
I love you and hope your mother is doing as well as can be. One thing is sure and that is that she will be getting the best possible care from you;
I really do love you

thank you the constant 24/7 is getting to me
i know its bad 4 him, i have my moments but keep trying