Hello. Sorry to hear your time is tough too. When was the peg fitted? L can still eat everything (e.g. fried breakfast) but has one PEG feed per day, when he is resting. He too is on the bipap almost 24/7. He takes short breaks, to give his face a break, for toilet, shower and good night kiss with Stan. Did you come to Bolton hospice? Day do day patient, so he could go there one morning per week to give you a break. Must be tough not having carers, I can just imagine. But having people in your house all the time is a nightmare too Ang. Dani